To Livabird, Capegirl and Costumenational
Hi Guys. I am really crap at this site so I only pray I can find this again. So Good Liva has had improvements. I was so 'glad' to read reactoins to the GP probs people have reagarding CCSVI - MINE HAS TAKEN ME OFF HER LIST! :
. Widdayado?? Only baecause I insisted on areferral for a scan. I am diag'd 2001 RR but had symptoms 37 years ago! I have been relatively well but always unable to take on stress without knowing why. Blaming myself for being lazy and a rubbish nurse - now I realise I was Fatigued. I have always had reallt bad OPTIC NEURITIS which the docs coulod never actully understand or describe althoug it is in the old Med books, I tihnk they are intimidated when they come to something they cant treat or understand
Now the extra stress, courteousy of the regrettable inertia of the Health Service, is that I probably stand a great chance of full recovery, if Zamboni is right, but now I dont even have a GP
. I even wrote to my MP who has written to Scotland's Health Minister stating how Kuwait is doing the right thing (one of my GPs actually suggested that!)
The GPs conceded they have NOTHING to offer me but have gone into this awful reaction rather just refer me: she did and I now have it in writing that they have neither the equipment nor trainig to scan me. And apparenttly Scotland is the MS World Capital
I am down for a Clinical trial but dont know when and I know I am getting worse.
I thnk I will end up going for a treatment using everything I have including selling my wee car so I could end up more depressed than ever.
Oh fear sorry for moaning..................all the best to you all