Those of you diagnosed with CCSVI - your azygos

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Those of you diagnosed with CCSVI - your azygos

Postby ndwannabe » Sat Apr 17, 2010 3:57 pm

If you had / have a blockage in your azygos, do you mind sharing a picture?

I've seen many o f the blocked jugulars, but don't remember seeing the azygos.

TIA!
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Postby Johnson » Sat Apr 17, 2010 5:18 pm

nd - You can see my azygos at http://www.thisisms.com/ftopic-10885-0-days0-orderasc-.html. On the Impressions report, it was only remarked that the imaging was inconclusive, due to the difficulty in imaging the azy. - especially the arch. This difficulty is apparently due to interference from the heart.
My name is not really Johnson. MSed up since 1993
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Postby ndwannabe » Sun Apr 18, 2010 12:34 am

Thanks!

I am worrying that the same / similar (i.e "non-conclusive") will be the deduction of my vascular doc that did the MRV purely on my insistence.

Have to wait and see...
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Postby manojag22 » Sun Apr 18, 2010 1:21 am

Whoever is goin for CCSVI diagnostic/ testing, please ask them to test your azygos vein, besides Jugulars. As per Dr. Zamboni research 86 % of population tested had problem with Azygos vein and majority of our current testing getting done for brain and neck missing out Azygos..
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azygos update

Postby hwebb » Sun Apr 18, 2010 3:49 am

venography revealed that my azygos was anatomically ultra-small. Blood did not flow through it well. It was ballooned to assist the flow.
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CCSVI screening- MRI stents

Postby silverbirch » Sun Apr 18, 2010 6:36 am

Dear Forum,

I’ve received my email from Ameds confirming my CCSVI screening/treatment - I now await next phase e.g treatment dates....

I’ve also secured an appointment EHC (uk) 9th July however should I get Ameds first Ill use EHC as a tool in checking treatment received from Ameds- that’s the plan as EHC already paid for (screening) £450.00

My questions to the forum;
Azygos veins would I be correct in my thinking that we have two?

One in the chest?
One in the brain?
Both are similar in sound but spelt slightly differently ?

What are the other areas to be screened ? I do have an idea but need clarification ?

MRI Stents/Ballooning

Giving that my condition is not bad I would push for ballooning ..however should I be presented with Ameds recommeding stents.

As I understand it MRI can not be preformed with metal /stents in place so how is my future MS monitored ?

Stemcells would be the next step in MS and again how is this to be screened /monitored if MRI can not be done .

RR/CIS 2009 One attack - no DMD -
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Postby manojag22 » Sun Apr 18, 2010 7:39 am

azygos is single vein and in chest only.
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Postby silverbirch » Sun Apr 18, 2010 8:07 am

thankyou manojag22

any idea on the name of vein intracranial that relates back to CCSVI ?
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Postby manojag22 » Sun Apr 18, 2010 9:12 am

mainly sinus vein
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Postby silverbirch » Mon Apr 19, 2010 6:04 am

Do you think this would account for the pain ii have in my nostrel/eye
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Postby Algis » Mon Apr 19, 2010 7:11 am

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Postby Rose2 » Mon Apr 19, 2010 3:06 pm

My azygos was only viewed during venography. Dr. Dake had a hard time finding it even then.
He kept searching during the venography because he was not satisfied with the flow and then finally found it. I remember when he did, he was so happy and yelled, "There it is! There it is! I knew it was there!!"

And a Neuro Radiologist cannot balloon the Azygos, as I understand it. It is out of his scope of work and must be done by a thoracic person.
So I am under the impression that Azygos problems are under diagnosed?
Dunno. Just wondering if they cannot be viewed easily it just makes sense.
Rose ;)
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Postby ndwannabe » Mon Apr 19, 2010 3:18 pm

Thanks Rose.

It does seem that azygos are hard to see in general.

So, when Dr. Dake found yours, did it have a problem? If it did, would he be able to balloon it, or as you said - you would need a different specialist to do it?
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Postby Johnson » Mon Apr 19, 2010 3:58 pm

Something that has been niggling at me:

The gal I see for cranio-sacral massage told me that there was a "bulge" in my azygos. She did not know what to make of it, nor what to do. But to the point, she also said that there was a lack of "motility" across including liver, gall bladder, stomach, bowel, pancreas, and just a slight bit in the spleen. Her description of motility is a kind of static tension developed as we develop in the womb, and that as the organs differentiate, and migrate from the centre line to their mature positions, they are always pulled back, while at the same time maintaining their proper positions.

I (touch wood) do not have any of the bladder and bowel issues that many have (she related the lack of motility to a lack of digestion). She told me that I am efficient in moving the bolus of food through, but that I am not getting nutrients. But back to the azygos, it is in that region, and there seems to be a lot of digestive/elimination problems in MS. It becomes chicken and egg again. Could the azygos be compromised by digestion (and motility), or vice-versa? It might seem that the motility tensions set up in utero could affect the azy., and that could affect the Vena Cava, which leads up to brachio-cephalic plexus, lower IJV, etc., right up to sinuses.

So, I rambled my way here, but I think that it is very possible that there is a lot more of azy. involvement.

I need to find out more about motility, and how to resolve issues. Actually, she keeps telling me to do Pilates - to build core strength...
My name is not really Johnson. MSed up since 1993
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Postby Rose2 » Mon Apr 19, 2010 4:14 pm

nd-
Thank you. I need to correct what I wrote. Dr. Dake OF COURSE knew where my Azygos was, but it was the blockage in my Azygos that was a bugger to find.
It looked like a garden hose folded back on itself, so the margins were not askew, looked straight until the flow, or lack of flow, was observed.
I certainly don't want anyone to think Dr. Dake was happy to find my vein.!
Sorry Dr. Dake if you read this. (chagrin!!!)
Rose ;)
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