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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby Gordon » Sun Apr 18, 2010 10:22 am

Can we please put a sticky that states something like

" How to hang in there until you are Liberated"

At this Sticky people could suggest ideas or tips to get them by until they can get the procedure done and how to prepare for the procedure ??



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Postby eric593 » Sun Apr 18, 2010 10:41 am

Hi Gordon,

What kinds of things are you thinking of to help "get them by" until the procedure?
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waiting for procedure

Postby Stayfit » Sun Apr 18, 2010 11:28 am

if you do not currently have physical training program. I would begin, there is real benefit helps to manage and being stronger going into procedure will help recovery. This was my experience for surgery related to cancer. Brain plasticity and muscle memory apply to MS. 15 years physical training over 35 years with MS. If you are interested how I apply physical training to MS. Get back to me.
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Postby happy_canuck » Sun Apr 18, 2010 2:20 pm

Great topic!

I am definitely taking better care of myself. These are the steps I have taken:

- inclined the bed 5 degrees
- eating MUCH better
- lost about 8-9 pounds; another 8-9 to go!
- doing my physio more regularly
- trying to swim (gone twice in a month), but headed to Hawaii this week for a holiday on a beach -- lots of swimming coming up
- now that I know I have stenosis, I am not turning my head sharply left and right, being more careful about straining my neck upwards

Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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Postby eve » Sun Apr 18, 2010 11:46 pm

I would want everyody to try Niacin (vit B3) in high dosage. Since I started taking it I can wiggle my toes again (not there for eight years), I am more energetic, my eyes stopped being funny and tempeture differences don't effect me as they used too.

Also - heatlhy eating, exercise and vitamine intake in general are helping. And IBT, indeed.
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
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Postby Stacemeh » Sun Apr 18, 2010 11:52 pm

How about vitamin D?

As I understand it Vit D is good for connective tissue and blood is a connective tissue so healthier blood maybe = healthier blood flow.

Just a thought :D
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Postby costumenastional » Mon Apr 19, 2010 12:45 am

May i suggest something here?

Lets all go to Hawaii with Sandra. :)
That would help me, A LOT haha
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Postby happy_canuck » Mon Apr 19, 2010 2:55 am

costumenastional wrote:May i suggest something here?

Lets all go to Hawaii with Sandra. :)
That would help me, A LOT haha


You got it -- there's a hide-a-bed in the living room of the place we rented.

Unfortunately, there's also a wireless internet connection...

Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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Postby costumenastional » Mon Apr 19, 2010 2:57 am

busted... :oops:
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