Please read.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Please read.

Postby costumenastional » Mon Apr 19, 2010 12:02 am

Thank you Cocochanel for the great find.

http://for-greet.squarespace.com/journa ... ponse.html

This is Simka speaking. And we should all listen.
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Postby ErikaSlovakia » Mon Apr 19, 2010 12:35 am

Very good!
I agree with Dr. Simka`s words.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby costumenastional » Mon Apr 19, 2010 12:41 am

Yes Erika.

Not only he is trying to help us in the best way possible.
He also speaks out the truth with simple words. He is not afraid of "them" and this is very important for people who are wondering what they should do.

He is speaking perfectly.

By the way, i hope you are doing well friend. Take care.
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Postby ErikaSlovakia » Mon Apr 19, 2010 12:49 am

costumenastional wrote:Yes Erika.

Not only he is trying to help us in the best way possible.
He also speaks out the truth with simple words. He is not afraid of "them" and this is very important for people who are wondering what they should do.

He is speaking perfectly.

By the way, i hope you are doing well friend. Take care.

Yes, I am fine. I will write a report about it in 2 weeks.
I have stopped to take my sleeping pills five weeks ago after 16 YEARS!
Of course, I feel much better. I am still not healthy, I still feel my MS, but oh boy I feel better!
I was riding a bicycle after 3 years yesterday! I still feel little problems with my balance - I think it is my left eye and my muscles are not strong enough, but I was riding more than 10 minutes not only 10 secondes!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby costumenastional » Mon Apr 19, 2010 12:57 am

I knew it ll come for you eventually. I just knew it. As i know that more will come slowly maybe but steady. But its better to wait from you to hear.

After all, we ll be here to talk about it ;)

I must also add that you were a GREAT help for all of us when you came back from Poland. Please continue Erika.

We all know what a fighter you are. Keep going.

I ll be waiting for your update whenever you feel like it.
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Postby Mutley » Mon Apr 19, 2010 1:13 am

That’s just what I needed to read, thanks for posting!

I’m due to fly back on Thursday (Volcano permitting) and maybe have a stent or something, so Dr Simka’s words have helped ease my nerves about stents.

Glad to hear you are doing well Erika, you take care!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby costumenastional » Mon Apr 19, 2010 1:23 am

Mutley, this is why i posted it. Cause i know how you are feeling. I know how i am feeling.
Relax friend. Always remember what we are trying to fight.
Dr Sclafani replied to a question of mine regarding stends in the most caring and proffesional way.

check it out if you havent already:
http://www.thisisms.com/ftopic-10680-da ... c-645.html

but, if i am to have problems from stending in 10 years and live MS free until then i prefer to take my chances. i dont want to live for ever. I just want to live.
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Postby Pepe » Mon Apr 19, 2010 1:57 am

ErikaSlovakia wrote:Yes, I am fine. I will write a report about it in 2 weeks.
I have stopped to take my sleeping pills five weeks ago after 16 YEARS!
Of course, I feel much better. I am still not healthy, I still feel my MS, but oh boy I feel better!
I was riding a bicycle after 3 years yesterday! I still feel little problems with my balance - I think it is my left eye and my muscles are not strong enough, but I was riding more than 10 minutes not only 10 secondes!
Erika


:D :D :D C O N G R A T S :D :D E R I K A :D :D :D

3 months after the angioplasty ... and María is doing well too...no steps back...I will update the traking post these days...

A big hug,

Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Pepe » Mon Apr 19, 2010 2:01 am

Mutley wrote:I’m due to fly back on Thursday (Volcano permitting) and maybe have a stent or something, so Dr Simka’s words have helped ease my nerves about stents.


All the best to you! Good luck! Please, keep us updated!

Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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