sbr487 wrote:Probably first visitor from China as far as I can remember.
Welcome to TIMS!
sbr487 wrote:Hi Zen,
I will look forward to that day. About the PPMS and procedure, other folks here might be in a better position to provide info.
BTW, are in a position to throw some light on the status of CCSVI in China?
For example, in India, now there are multiple choices as to where we can get tested and operated. The competency levels might vary. Still it is early days. Just wanted to know since it is not easy to get inside info from China mainly due to language barrier.
Donnchadh wrote:My neuro re-classified me as PPMS after a February exam. I had my first liberation procedure done last month. I had dramatic improvements for five days following, but unfortunately the internal jugular veins have re-stenosis.
search "Donnchadh" for related posts.
However, I was diagnosed CCSVI in China while I was suffering from severe headaches (optic neuritis). At this time, I thought it was just a regular migraine
The funny thing is that the Chinese doctor told me “the narrowing of your vein can explain why you have headaches” .
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