From Joan's facebook page

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

From Joan's facebook page

Postby costumenastional » Tue Apr 20, 2010 2:42 am

Hope she wont mind

http://www2.macleans.ca/2010/04/19/the- ... %E2%80%99/

If only it was like that for every liberated patient...
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Postby MaggieMae » Tue Apr 20, 2010 4:30 am

Great articles. Thanks.
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Postby costumenastional » Tue Apr 20, 2010 4:32 am

Glad you like it :)
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Postby patientx » Tue Apr 20, 2010 6:36 am

Boy, talk about inaccurate statements and spin;
When he cleared the veins using a balloon angioplasty, Zamboni witnessed remarkable transformations: those in the early stage of the disease had a full recovery; those with severe disabilities showed marked improvement—more energy, renewed sensation and movement in hands and legs, and improved vision.
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Postby cheerleader » Tue Apr 20, 2010 7:45 am

Yeah, patient...lots of over-stating or under-stating happening in the press. That particular quote doesn't bother me as much as the byline. It appears that grey area does not sell publications as well as hyperbole.

Funny thing is, I spend more time on that FB page reprinting the research, and repeating not cure, not cure. But I think Dr. Freedman's "hoax" statement was just as inflammatory.
ironic, huh ?
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby sou » Tue Apr 20, 2010 8:03 am

And a super-dooper stupid question:

What is your facebook page, cheer?

sou
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
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Postby cheerleader » Tue Apr 20, 2010 10:03 am

Sou (r)--
how are you? Update us, please...

The page I started last August (to help people on Facebook who were looking for info on CCSVI) can be linked to by clicking on the blue letters in my signature below. It kind of went nuts after the CTV news piece. We have over 12,000 fans from 25 different countries. My writing is under the "notes" section, but the wall is open to all. It's spawned a lot of regional FB sites on CCSVI (just search CCSVI on the Facebook homepage and you'll see) You don't have to have a Facebook page to check it out, it's public.
keep in touch-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby MrSuccess » Tue Apr 20, 2010 10:55 pm

I thought the article a good read. I was pleased to read information that I have somehow missed.

It is getting harder to keep score with who is providing CCSVI treatments and their results. :!: Isn't that fantastic ?

The next big meeting of the CCSVI experts and investigators should be what we have been waiting for . Anyone know if and when-where it will happen ?

In the mean time .... I have been following with interest some rather testy if not outright vulgar comments aimed at professional medical people that do not share the pro CCSVI viewpoint. :evil:

As we clearly can see here on TIMS , MS people are thoughtful , polite , and most of all .....intelligent .

What has been discovered stands . Let's advance CCSVI one step at a time .....and defend it with FACTS when challenged. :idea:




Mr. Success
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Postby costumenastional » Wed Apr 21, 2010 6:38 am

MrSuccess wrote:In the mean time .... I have been following with interest some rather testy if not outright vulgar comments aimed at professional medical people that do not share the pro CCSVI viewpoint.


;)
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