Is anyone replicating Dr Zamboni's work?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Is anyone replicating Dr Zamboni's work?

Postby NZer1 » Tue Apr 20, 2010 10:27 pm

Since breaking the news of Dr Zamboni's hard and dedicated work medical experts have cried there is no replication of his findings. From what I have read to date no-one is trying to replicate what he has presented, they are giving his results their own twist and in essence have moved on from the initial work of Dr Zamboni.
Each of the research studies that are in progress are not replicating the equipment, method or study participants. It would appear that the research that is now being undertaken has motive, either personal ego or status for the institution or financier driving their research criteria.
I guess the next level of information gathered will start a new beginning in this race for answers. And a renewed need for replication?
In the meantime there are PwMSers who are benefiting taking the initiative and having treatment.
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Postby mshusband » Wed Apr 21, 2010 5:46 am

After the Wright brothers built a flying machine and learned to fly (the first flight was 12 seconds) ... nobody tried to replicate flying for just 12 seconds - yet flying continuously improved because of their efforts to push forward instead of just replicate.

That's what's going on with the research today. Zamboni laid the framework ... it has been replicated, but is being expanded upon by each of these doctors.

I'm not sure I understand why you want to replicate it instead of trying to learn more ...
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Postby lucky125 » Wed Apr 21, 2010 7:32 am

Georgetown is replicating the procedure part. They do not have a transcranial doppler, so they are just screening with a regular one.

I think that they are impressed with his high rate of stenosis found with venogram.

So far 2 out of 2 of us have proven him right! My friend, #3, was just treated yesterday. I am waiting to hear from her.

I really believe that one day, a positive MS diagnosis will lead directly to CCSVI screening, and probably treatment. Zamboni and Sclafani have found 100% of MSers have stenosis during venogram.

I am skeptical of Buffalo and Georgetown's 50% rate on noninvasive tests. I think that they are dramatically under-diagnosing using this method.

We will just have to wait and see!
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby cah » Wed Apr 21, 2010 10:15 am

lucky125 wrote:I really believe that one day, a positive MS diagnosis will lead directly to CCSVI screening, and probably treatment.


I think CCSVI diagnosis could one day be useful as an indicative factor for the diagnosis of MS, like lumbar puncture or evoked potentials. (With the difference that once found, this can be treated.) If I had the diagnosis of a "probable" MS, I'd look for CCSVI screening.
"There is only one good, knowledge, and one evil, ignorance." Socrates
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Postby Billmeik » Wed Apr 21, 2010 12:06 pm

I thought the score was

zamboni 100

simka 95

Jordan 88?

buffalo 62


There are at least a dozen other sites...

but false creek, which published numbers aroud 50% is now seeing ccsvi in most ms patients. They should publish again.


Even buffalo has said things about being able to do the imaging better in their next 500 patients.

So all over the world there is replication going on. Probably over 350 liberated. But good data needs to be collected on how these patients are doing now. Like image comparisons of mri to look for disease activity.
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Postby Opera » Thu Apr 22, 2010 4:01 am

"So all over the world there is replication going on. Probably over 350 liberated. But good data needs to be collected on how these patients are doing now. Like image comparisons of mri to look for disease activity."[/quote]

I agree that the MRI is irrefutable data on patient progress. If the MRIs are clear critics will find it difficult to attack CCSVI improvements as "mere placebo".
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Postby Billmeik » Thu Apr 22, 2010 7:47 am

also if the liberated have a good mri from just before or after the procedure to compare.
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Postby Cece » Sun Apr 25, 2010 1:57 pm

Billmeik wrote:Probably over 350 liberated.


350 is still a very small number, all things considered.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Dr. Simka

Postby Rosegirl » Mon Apr 26, 2010 4:24 am

Dr. Simka said he's done almost 250 procedures.
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Postby bestadmom » Mon Apr 26, 2010 5:22 am

Dr. Sinan in Kuwait is using the Zamboni protocol to treat every ms patient in the country. With numbers ranging between 3000-6000 patients, it will be the largest group being treated in a controlled manner. It will take several years to track results, but they are tracking them.
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