Flashover81 wrote:I have a 14 year old son, diagnosed with ADEM (acute disseminated encephalomyelitis). I was wondering if this procedure has been performed on children? His attack was a month ago symptoms were nystagmus and ataxia. Was on sol-u-medrol for 5 days. He returned to normal after 7 days. Waiting for 2 months for another MRI.. Any info would be greatly appreciated...I as many hope for a cure for this disease...
Flashover81 wrote:Just got my sons MRI report. He had 2 previous MRI's that were stable in the last year and a half. The current MRI shows 2 new leisions Predominately right frontal,not actively enhancing and not hyperacute. Have a appt. with Nuero at U.S.F. in Tampa on Thursday. He has not had any relapses that I have seen since his first episode. I ask him all the time and also watch him for weakness and anything out of the ordinary. I am just worried about the possibility of Nuero recomending putting him on one of the CRAB's. We try to make the best choices when we cook and eat, but it's not 100%. He has been on Vit D 5,000 units for the last year and a half. Have looked at all the options CCSVI and also stem cells. If it were me that had this dreaded disease it would be easy to risk the different major procedures (CCSVI and STEM CELLS)but it is hard trying to make a decision for your CHILD. I hate to put him on the injectables if they are mainly for relapses (he hasn't had any) and not progression. I went to one of the forums on CCSVI in Tampa. Also our Nuero is Dr. Krolszyck, super nice guy, thinks outside the box. Help me with any questions I should ask. We go up on 3/8. I'm also a Firefighter with some medical knowledge. But my mind is not thinking straight these last few days, pretty stressed,worried and upset. Any thoughts would be greatly appreciated. Thanks Jimmy.
http://www.youtube.com/user/RadiologySU ... ature=mheeDetermine if you're prepared to treat children. Can you handle complications and problems if you treat children in an outpatient ambulatory setting, without the back-up specialists at a hospital?
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