CCSVI Calgary Press release- April 21 2010

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Calgary Press release- April 21 2010

Postby Gordon » Wed Apr 21, 2010 2:24 pm

CCSVI Calgary - Multiple Sclerosis Patients Demand Zamboni Liberation Treatment NOW

A local grass roots group has formed recently in Calgary made up of MS sufferers and their family and friends. CCSVI Calgary is not alone either. Many groups have formed all across Canada. CCSVI Calgary is lobbying hard to get testing and treatment for a controversial MS treatment based on the research of Dr. Paulo Zamboni of Italy. Briefly, CCSVI stands for chronic cerebro-spinal venous insufficiency. Dr. Zamboni found that by far the majority of MS patients all shared blocked internal jugular and azygos veins. These veins are responsible for draining the deoxygenated blood from the brain back to the heart. Because of the blockages the blood was forced back to the brain causing neurological damage that has been labeled for years as multiple sclerosis. When he opened the veins up the patients got better and their attacks and progression stopped. Many MS patients have gone overseas to have the treatment because they cannot wait years for our government to approve this procedure. The treatment is a day surgery procedure that takes approximately 30 to 45 minutes. It is an angioplasty treatment that uses a balloon to open the blocked veins. The angioplasty procedure for the neck region is not new to medicine. It is done on a daily basis all across Canada and the world to unblock kidney dialysis patient’s internal jugular veins.

CCSVI Calgary’s requests are simple.

1. Full Scanning immediately for CCSVI using the most accurate process possible.
2. If CCSVI is detected, then angioplasty treatment should be done.
3. Follow-up angioplasty treatment if restenosis occurs.
4. Investigation of the stenting procedures that are being used in Poland for treatment of CCSVI.
Priorities are to be given to those that need treatment immediately as Dr. Paolo Zamboni recommended on a compassionate basis. Time is of the essence. People are going blind, loosing bodily functions, becoming crippled and dying at a far too young age.

CCSVI Calgary is proposing

To work with the Alberta government to commission a formal self funded treatment study of Dr. Zamboni’s liberation procedure. This test is to be fast tracked and based on the following.
1. Send a team of four Surgeons and Interventional Radiologists to Italy and Poland immediately. May 2010.
2. In parallel establish testing protocol, before, during and after the surgery.
3. Start treatments as soon as they are back from their trip. Again, time is of the essence. People are dying. - June 2010.

Funding will come from the patients of CCSVI Calgary. CCSVI Calgary will raise 250 K to 500 K to fund the tests and treatment. The patients that fund the test are to get the treatment. They all have an excellent documented history of the progress of their disease. Placebo effect is inconsequential. Time is running out for many of us.
This is a tremendous opportunity for the government of Alberta to show to its Canadian citizens and the world that Canada does not sit around and wait, but instead, acts to work with the patients to solve one of the most debilitating mysteries in medical history.
We can no longer sit idle and let one set of Doctors argue with another set of Doctors, nor can we as MS patients, friends and family argue and complain. Enough is enough.
We want to work together as a team immediately. Patients and doctors alike must set aside egos and anger.

In conclusion it has been said more studies have to be done. It has also been said that funds need to be raised to do these studies. It has been said that the Link has to be proven.
In this one offer to work as a team all three can be answered.
The time is now. We are sick and tired of being sick and tired. No is not an option. We are asking Alberta to act.

Ginger MacQueen
Phone number - 403 969 3905
Director of Communications
CCSVI Calgary -
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Postby Brightspot » Wed Apr 21, 2010 4:59 pm

Great work CCSVI Calgary!!!
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Postby BELOU » Wed Apr 21, 2010 5:11 pm

Good job! Unfortunately I'm living in Québec. I should have moved to Calgary few years ago :wink:

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Postby ozarkcanoer » Wed Apr 21, 2010 7:35 pm

Ginger, I am sure glad you are a fighter for MS !!

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Postby beerduff » Wed Apr 21, 2010 9:46 pm

What an excellent letter. Sad that it has come to this that we have to try and get the medical community onboard.
After this week i am truly going to get more pro active in my endeavors.
I noticed there is a meeting in Calgary on Friday 30th April 2010, i must make this meeting.
More info follow the link.[/img]
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Postby eric593 » Wed Apr 21, 2010 10:49 pm

Why would placebo effect ever be "inconsequential"? Doesn't it matter whether the treatment actually works?
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Postby Hockeydad » Thu Apr 22, 2010 5:41 am

Depends on your definition of "actually work". If you are feeling better, and can function better, then it actually works. Will it rid you of the lesions etc? Does the body invariably repair itself? Who knows at this point.
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Postby welshman » Fri Apr 23, 2010 3:20 pm

I just posted on another site with same info: Anyone from CCSVI Calgary please post how you started this wonderful organization, help us set these up across Canada and at least into BC (living in Kelowna BC).
This is what we need organized across the Country. Well done.
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Postby iggy » Fri Apr 23, 2010 5:08 pm

Congratulations Calgary CCSVI - yours is a great model for those of us in other cities to adopt!
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