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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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daytrader
PostPosted: Fri Apr 23, 2010 11:32 am 
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I am curious if it is just a coincidence or related to opening up the veins...
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SaintLouis
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PostPosted: Fri Apr 23, 2010 11:36 am 
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Could be the dye - my dh had the exact same reaction the evening after having a CT scan that involved the same contrast material. It went away after 24-48 hours. Hopefully that is all it is!
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daytrader
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PostPosted: Fri Apr 23, 2010 11:50 am 
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thanks.......i thought maybe with better flow i was releasing stuff.......or i just got a slight chest cold
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daytrader
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PostPosted: Mon Apr 26, 2010 12:27 pm 
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I think a vein restenosed on saturday at 3:30....clear head, ear's, energy all went away....gack to ringing, fog, and tired..I read that this could happen....I need a recheck, ugg!
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bluesky63
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PostPosted: Mon Apr 26, 2010 3:40 pm 
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I'm so sorry you're having difficulty! Will you be able to get checked for restenosis? Is there anything else going on (are you sick)?
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kc
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PostPosted: Mon Apr 26, 2010 4:11 pm 
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daytrader,

It could also be a herxheimer reaction.
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daytrader
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PostPosted: Wed Apr 28, 2010 8:53 am 
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going to local doc today...not better...could be a cold as fl allergy season is bad.
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daytrader
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PostPosted: Wed Apr 28, 2010 1:32 pm 
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doc says abx..biaxin, and yes, i get checked in 4 weeks or sooner if I can get in. thx
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daytrader
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PostPosted: Mon May 03, 2010 4:44 pm 
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back for vein checks on friday....squeezing me in.
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daytrader
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PostPosted: Sun May 09, 2010 7:01 pm 
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blood clot in left ijv with no flow..ugg
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daytrader
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PostPosted: Sun May 09, 2010 7:08 pm 
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cough could be pe........ugg
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fernando
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PostPosted: Mon May 10, 2010 7:46 am 
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Sorry to read that.

Did they resolve the issue?
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bluesky63
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PostPosted: Mon May 10, 2010 9:00 am 
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I wonder if your d-dimer is high. My d-dimer was high and I had no PE. Apparently a high d-dimer can be associated with an MS relapse, so that may not be reliable. But you would definitely not want to miss an embolism!

What's the situation now?

Sorry -- editing for a question -- when you say vein checks, do you mean a new venography, or a doppler or some other noninvasive test?

I'm so sorry about your symptoms. I hope this doesn't turn out to be a major complication for you.
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cheerleader
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PostPosted: Mon May 10, 2010 9:11 am 
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Daytrader....wishing you answers and anticoagulation! Keep us posted. Thoughts go out to you. These kind of complications are the reason I keep hoping people can stay local (for people who don't know medical lingo- PE is pulmonary embolism) Follow-up is essential.
take care-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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daytrader
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PostPosted: Mon May 10, 2010 10:58 am 
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they have me doing shots of lovenox and coumadin....go to local doc at 4p today
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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