I have been back from Poland for 4 weeks now, afer being liberated. I had an appointment for blood samples to be taken on Wednesday, in my Neuros hospital. I never spoke with my neuro prior to going to Poland, I only called the hospital to tell the nurse that I will not be coming back for my treatment, which was Tysabri. My last infusion was on February 15th.
I was sitting in the waiting room, expecting the nurse to call me to take some blood and my neuro came out and called my name. I went in and told him I have been to Poland, he replied "I have heard". He appeared slightly annoyed and he then said " If you had spoken to me prior to going, I would have advised against it as it is only a theory and there is no evidence to support any of the claims" I stated that there has been trials and began to rhyme of all of the names of the Dr's involved in the trials. This left him speachless for a few seconds before he took me to have a look at me.
After doing this I sat down with him again and he never commented on how I was. Normally he will explain if he thinks I have improved or that I am worse, not this time.
I told him that I will stay off Tysabri and he stated that Tysabri will still be in my system. This is despite the fact he has told me previously that Tysabri will stay in your body for 6-8 weeks. He wants us to believe that we need the drugs!!
I know for a fact that I have improved and he knew this but could not admit it, shame on you!!!
He would have known that I went to Poland as the nurse would have told him but I have also been in the newspaper here in Glasgow, so it would have been rewarding to see him squirm when he read this.