What are the magic words to the doctor?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

What are the magic words to the doctor?

Postby notadoc » Fri Apr 23, 2010 2:41 pm

I have completely struck out in trying to find someone qualified and willing to do the Liberation Treatment in Colorado. I understand that when I say "MS" they think "neurologist." When I say "CCSVI" they think "radical", "experimental", "dangerous", or most often "never heard of it".

Taking the advice of Joan and others, I would like to approach this as a vascular problem, but how likely are they to want to see me if I say I think I have occlusions or stenosis of the jugular veins? Or is it better to describe symptoms without mentioning the scary words above and hope they will agree to use the proper tests and protocols?

Looking for a path around, over or through the stone wall.
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CCSVI...words to the doctor

Postby belsadie » Fri Apr 30, 2010 3:23 am

Good day to all,
I woke up this AM wih these thoughts. When a woman reaches a certain age, her OBGYN insists she have mammograms. regardless of family history or symptoms to SCREEN for cancer. And if anything is found Non-invasive further testing, or maybe even surgery is indicated. Men are SCREENED for prostate cancer., whether there's family history or symptoms or not. And if anything is found, surgery may be indicated. Pain in your belly? Mayne it's an ulcer. Let's check family history,no but symptoms? yes. meds first then maybe an endoscope is in order. And don't forget your colonoscopy.
Stroke presents with neuro symptoms but is defined as a cardiovascular problem.
This can't be turned into a, "Which came first, the chicken or the egg?" type of debate,
There is such precedent for SCREENING tests, why not look at MS not as a disease itself, but as a group of neurological symptoms point toward a vascular problem that needs to be tested for? and even surgically intervened with.
Let's take MS out of the clenched fists of neurologists and place it gently in the laps of the vascular specialists.
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