This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 5:58 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 2 posts ] 
Author Message
PostPosted: Fri Apr 23, 2010 3:41 pm 
Offline
Getting to Know You...
User avatar

Joined: Sat Dec 05, 2009 4:00 pm
Posts: 13
Location: Denver
I have completely struck out in trying to find someone qualified and willing to do the Liberation Treatment in Colorado. I understand that when I say "MS" they think "neurologist." When I say "CCSVI" they think "radical", "experimental", "dangerous", or most often "never heard of it".

Taking the advice of Joan and others, I would like to approach this as a vascular problem, but how likely are they to want to see me if I say I think I have occlusions or stenosis of the jugular veins? Or is it better to describe symptoms without mentioning the scary words above and hope they will agree to use the proper tests and protocols?

Looking for a path around, over or through the stone wall.


Top
 Profile  
 
PostPosted: Fri Apr 30, 2010 4:23 am 
Offline
Family Elder
User avatar

Joined: Sun Mar 28, 2010 3:00 pm
Posts: 106
Good day to all,
I woke up this AM wih these thoughts. When a woman reaches a certain age, her OBGYN insists she have mammograms. regardless of family history or symptoms to SCREEN for cancer. And if anything is found Non-invasive further testing, or maybe even surgery is indicated. Men are SCREENED for prostate cancer., whether there's family history or symptoms or not. And if anything is found, surgery may be indicated. Pain in your belly? Mayne it's an ulcer. Let's check family history,no but symptoms? yes. meds first then maybe an endoscope is in order. And don't forget your colonoscopy.
Stroke presents with neuro symptoms but is defined as a cardiovascular problem.
This can't be turned into a, "Which came first, the chicken or the egg?" type of debate,
There is such precedent for SCREENING tests, why not look at MS not as a disease itself, but as a group of neurological symptoms point toward a vascular problem that needs to be tested for? and even surgically intervened with.
Let's take MS out of the clenched fists of neurologists and place it gently in the laps of the vascular specialists.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 2 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Dr. Zamboni words of caution on stents.

[ Go to pageGo to page: 1, 2, 3 ]

Nunzio

31

7963

Thu Mar 18, 2010 3:58 pm

Zeureka View the latest post

There are no new unread posts for this topic. Dr. Schelling's words after his return from Orlando.

Rici

1

477

Wed Feb 29, 2012 9:02 pm

David1949 View the latest post

There are no new unread posts for this topic. CCSVI: Some Words of Caution. Wheelchair Kamikaze's new blog

[ Go to pageGo to page: 1, 2, 3 ]

TMrox

35

3648

Tue Nov 23, 2010 10:15 am

Cece View the latest post

There are no new unread posts for this topic. MN Doctor

BadCopy

4

983

Thu Apr 07, 2011 8:19 pm

BadCopy View the latest post

There are no new unread posts for this topic. What tests should I ask my doctor for?

catlady

3

865

Wed Nov 25, 2009 1:36 pm

ozarkcanoer View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum