For those planning to champion CCSVI with their neuros

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

For those planning to champion CCSVI with their neuros

Postby fogdweller » Fri Apr 23, 2010 5:36 pm

For those of us that have tried to seriously discuss the science of CCSVI with their neuros or other doctors and have been dismissed as falling for a wierd, crack-pot theory from the internet, it is important to have good scientific documents to present to bolster our position. This forum is FULL of such papers, and it is always good to use peer-reviewed published papers from a reputable journal. I find that the best persuation is not to evangelize, just lay out the facts and let them do the persuading.

An interesting thread from early on is "A history Lesson by Dr. Mark Hacke" I think it was called. A good academic paper from Dr. Mark Haacke The article is found at http://www.ms-mri.com/history.php It is by Dr. Mark Haacke, PhD who has a fairly impressive CV: http://www.mrc.wayne.edu/people/haackecv.pdf


I was quite surprised to find that the idea that MS was the result of a vascular problem, possibly inadequate drainage, is not a new and radical theory suddenly sprung on the amazed MS community by Dr. Zamboni. It is a very old and well considered opion held by, among others, one of the founders of the National MS Society, Dr. Putnamin the 1930's.

The thread is a great read and I bring it up to reintroduce it to other newbies out there who missed it the first time around. I was glad when I found it.
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Taking on your Neuro

Postby MarkW » Sat Apr 24, 2010 8:14 am

Hello fogdweller,
This is a useful paper but I recommend that before anyone takes on their neuro they study http://csvi-ms.net/en in a lot of detail. I can out argue my neuros on CCSVI but this has taken a lot of study.
Good luck,
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby ozarkcanoer » Sat Apr 24, 2010 12:57 pm

MarkW,

That is a superbly maintained website that everyone should study.

ozarkcanoer
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Postby fogdweller » Sat Apr 24, 2010 2:49 pm

Thnk-you MarkW. This is an excellent web source. I often have to search back through the TIMS forum for a particular reference or collection of info, and in many cases it will be collected for me in this web site.

When one thinks of the decades of frustration Dr. Putnam and Dr. Schelling went through espousing a very similar theory to Zamboni, and see Zamboni's work essentially discounted by the MS neuros and MS societies, you wonder whether Zamboni too would have been shrugged off and ignored if not for the accessability the internet povides to the actual MS patients.

Power to the people!! (lol from an old sixtes teenager.)
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