*VERSION FRANÇAISE DANS MESSAGE SUIVANT*
The purpose of this thread is to get an overview of CANADIAN that got tested for CCSVI. Here we hope to collect as many accounts as possible, neatly organized without interruptions.
So, the idea of this thread is to have one post per patient, each of which will hopefully be updated regularly using the "Edit" feature, basically however often patients like (though probably not too often as this might make the long term development hard to follow). Edits should be to the point and could include past MRI and other test results, original CCSVI testing results, side of major IJV stenosis (if applicable), side of most lesions as well as symptoms.
**This is not a thread compiling treatment** (might be coming)
Finally, if you could post MRV and other images, that would be fantastic to give people a feel for what kinds of malformations we're looking at. I found http://photobucket.com/
a hassle-free site for uploading and hosting images anonymously.
For the sake of keeping the thread neatly organized, we ask others to refrain from posting comments on patients logs. [u][u]Comments outside of personal CCSVI accounts will be erased by the moderator.[/u][/u]
*the moderator does this to help Canadians with MS to get information, but this doesn't represent any form of statistical analysis, the moderator cannot verify the information submitted and finally, this IS NOT a governmental site or from for the MS Association* THIS IS PURELY INFORMATIVE.
CCSVI TRACKING [Please use date format DD/MM/YYYY]
Name (if want, use your nickname on this site):
Male/Female (M/F) :
Number of years with MS:
Form of MS:
EDSS (To review EDSS rating, click the following link: http://www.mult-sclerosis.org/expandedd ... scale.html
FSS (To calculate FSS rating, click the following link: http://www.mult-sclerosis.org/fatigueseverityscale.html
Are you using Inclined Bed Therapy I.B.T? (Y/N) :
Tests done for diagnosis:
Name of the machinery used (if known) :
Protocols followed (Simka's, Haake's, if known) :
Have the tests been done in Canada? (Y/N) :
As a clinical trial? (Y/N)
(if yes, where?:)
Practician that referred you for the test (neurologist, GP....) :
Cost for the test (s):
Was (where) the test(s) showing CCSVI? (Y/N) :
Date and type of lesions:
Lesions location (if known) and number:
Will you (or did you) get "liberated" in Canada? (Y/N):
If so, by which type of pratician (Interventionist radiologist, vascular surgeon...):
Do you think going outside the country for a treatment? (Y/N):
If the treatment was avaible in Canada within a year, would that change your answer? (Y/N):