At some tipping point , this will become more of a legal issue if they do not treat it.
Negligence is failure to do, or not to do something that a reasonable and prudent person would do, or not do in a given circumstance. The omus is higher for professionals obviously.
At some point, with the 70-90% comcurrence, everyone should have their circulation problems investigated for ccsvi. Testing is easy and a no brainer.
Here we are, all progressing at various speeds downhill, while the worlds biggest game of legal footsie is getting wound up.
Its fine to, first "do no harm" , but do something.
I do agree and I've felt this completely felt like discrimination as I was hearing of all the trouble so many have been having simply because we have MS. And in countries like Canada & England, from what I have heard with the govt coming outright saying no if you have MS, that IS discrimination. In the US, I've learned more about the process and in the few cases that it has been forced to go to IRB before continuing, it is within the process of what the hospital should be doing to protect the patient as much as protect themselves. If the IRB comes back and refuses to treat us because we have MS, THEN we can all get in an uproar and raise the discrimination stink. And there are those in the US that want to start class action cases but while the hospitals are doing what they are supposed to be doing, we don't have a case. I hate that this is the way things work. I suppose that if it weren't such an easy procedure to make such a huge difference in our lives, we would be more appreciative that they put the brakes on while they dotted their Is and crossed their Ts. Since it is so widely practiced and done all the time for other reasons, then it should get through IRBs and then open to be available to us without ay trouble...
Would be great if we could do something that would open up the red tape in one fell swoop to be available everywhere. I suppose that is naive but if anyone has any ideas on how this is possible, like doing it for all the states in the US, would love to know how we begin to get this done...