This Is MS Multiple Sclerosis Community: Knowledge & Support

We need to separate the irrational fear of complications between veinoplasty and stents!!! No adverse events, to my knowledge, have been attributed to veinoplasty ("the liberation procedure"). Yet the two adverse events at Stanford, both with stents are thrown up as justification for stopping ALL treatment.

Angioplasty is very safe, has a very long history in the arteries and the periferal veins and elswhere, with very very few adverse events. Can Tysabri say that?

Perhaps stents in the jugular veins need some further study before they become widely available. However lumping stenting and angioplasty (veinoplasty really) together is really ignorant, something vascular surgeons and IR doctors would not do but seemingly no problem for neuros.

blagh, a skepticism-inclined friend on Facebook just posted this:



So now I gotta argue with him ...

you did get it wrong

i was the one who discovered america

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The Multiple Sclerosis Resource Centre

Squiffy's House of Fun - Laughter for Multiple Sclerosis

How funny it was my blond moment....

Any how all jokes aside - would I be correct in my thinking that this was indeed presented 30 years ago and was dismissed back in the day ?

Dr Sclafani see how rumors start people like me getting it all wrong .. hope it gave you a giggle xx

Many Thanks to the guys that correct me xxx]

I do have to speak up to keep the rumor mill in check. Dr. Bonn will be back in business as soon as he can get IRB approval. The way he was stopped was highly uncalled for. BUT, it was not outside influences but his own radiology department's legal practice that stopped him. There were a couple of concerns and they had nothing to do with the procedure itself. There needs to be language added to the consent forms was one of the big concerns by legal. I also have come to find out that there was concern with people coming from out of country and from areas that insurance may not readily cover this and would the hospital get stuck with bills not being paid. So, this was all about covering @ss. He will be back up and running as soon as he can.

Hi
At some tipping point , this will become more of a legal issue if they do not treat it.

Negligence is failure to do, or not to do something that a reasonable and prudent person would do, or not do in a given circumstance. The omus is higher for professionals obviously.
At some point, with the 70-90% comcurrence, everyone should have their circulation problems investigated for ccsvi. Testing is easy and a no brainer.
Here we are, all progressing at various speeds downhill, while the worlds biggest game of legal footsie is getting wound up.

Its fine to, first "do no harm" , but do something.
Scotland

I do agree and I've felt this completely felt like discrimination as I was hearing of all the trouble so many have been having simply because we have MS. And in countries like Canada & England, from what I have heard with the govt coming outright saying no if you have MS, that IS discrimination. In the US, I've learned more about the process and in the few cases that it has been forced to go to IRB before continuing, it is within the process of what the hospital should be doing to protect the patient as much as protect themselves. If the IRB comes back and refuses to treat us because we have MS, THEN we can all get in an uproar and raise the discrimination stink. And there are those in the US that want to start class action cases but while the hospitals are doing what they are supposed to be doing, we don't have a case. I hate that this is the way things work. I suppose that if it weren't such an easy procedure to make such a huge difference in our lives, we would be more appreciative that they put the brakes on while they dotted their Is and crossed their Ts. Since it is so widely practiced and done all the time for other reasons, then it should get through IRBs and then open to be available to us without ay trouble...

Would be great if we could do something that would open up the red tape in one fell swoop to be available everywhere. I suppose that is naive but if anyone has any ideas on how this is possible, like doing it for all the states in the US, would love to know how we begin to get this done...

For now we have no reason to believe that this won't happen.

If doctors are thinking, this procedure is so simple, we don't even need an IRB at all...and it's only because of the controversy that the legal or admin is stepping in with the requirement of an IRB...then I think IRB approvals will be coming in by the bunches in the next few months.

It really is a simple procedure.

I think however hospitals billing departments could be right that there is a risk of nonpayment, especially if insurance companies balk. Maybe that will be the next big hurdle...but it will take more than a hurdle to stop this, at this point...

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Dr. Sclafani, I just want to thank you for discovering America-- oh, and that other stuff you're doing re CCSVI treatment
Thanks for injecting your humour into your postings-- you are one funny dude!