This Is MS Multiple Sclerosis Community: Knowledge & Support

My neurologist strike has been a given for quite some time now. But I am only one.

Step by step the longest march can be won
Many stones to make an arch, singly none
-Pete Seeger

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Sorry but I don't understand 'My neurologist strike has been a given for quite some time now. But I am only one. ' I know, it should be some kind of expression but could you explain. I'm French Canadian.
Marc

CCSVI is a vascular condition that results in the neurological condition known as MS...it is worrisome to hear talk of neurologist strikes, when we do all have a neurological condition...

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

It would be good to know the whole story before we start getting upset... who has forbidden whom from doing what, and for what reason. If the assumption of some of you is correct and it is the CMQ that has ordered the Westmount Clinic from doing Dopplers, I would still like to know why - or at least the reason they give, because if it is not a VERY valid reason, I would think that the organization should be facing one hell of a class-action law suit, wouldn't you think?
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

fiddler,
My friend was on the phone with Westmount and she gave me the info to pass along as she's not on TIMS. I asked her about why the doppler and not the MRV as it just doesn't make sense and they didn't give her a reason just that it is a decision from "Le Collège des médecins".
Hopefully, it's temporary.
a

Thank you, Anna, I understand, but we need more information... I don't mean that I'm expecting or asking you to get it, but rather that perhaps someone who has contacts in Westmount can get the story, or can get Westmount and/or the CMQ to explain the situation. Better still, sounds like a job for a Montreal journalist... anyone out there know one?
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

I suspect they are being vague with reasoning for a reason, as funny as that sounds.
Good idea about the journalist. I will ask my friend who is out there. She may have a link or two.
Shouldn't you be resting??? lol
be well

We have an early flight tomorrow, but can't sleep... gonna pay for it tomorrow...

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

I have e-mailed CMQ for clarification on the situation.
Hopefully, they'll respond.
Safe flight back home, Ted.
a

Please let us know whether they respond, annad. We need to nail these regulatory bodies down on their position so that we can make it public and respond accordingly.

For sure, Eric.

You know, we need to flood all these organizations and our politicians with the Consensus Statement of the International uni0n of Phlebography.

http://csvi-ms.net/en/content/consensus ... y-iup-2009

Surely that must carry some weight to those who are saying that CCSVI testing should not be considered within the "standard of care" provided by our doctors and the basis this clinic and others are using to deny us private testing.

If the condition has been acknowledged by a reputable body of international experts, how could testing for the condition be denied?

Is the IUP an organization with some credentials to it that others should not be able to deny their consensus statement?

The notice on Westmounts website changed today to the following update.

http://www.radiologymontreal.com/

News announcement


Please note that we are no longer booking the Jugular Vein Doppler for Venous Insufficiency. We have been advised by the college des medecins to hold off on them until they officially rule on the practise of this exam. We regret the inconvenience this may cause however we have agreed to comply with this request and will not offer this service until further notice.

For more information on CCSVI please refer to the below websites

http://csvi-ms.net/en
http://www.mssociety.ca/en/research/med ... 21_faq.htm

and forums such as:

http://www.thisisms.com/forum-40.html
http://www.msliberation.ca/MS_Liberatio ... sting.html

Thank you for that! I checked their site a day or two ago and nothing was there.
Still scratching my head.

Good point PCakes.
I for one have no intention of returning to the UBC MS Clinic.