This Is MS Multiple Sclerosis Community: Knowledge & Support

you're not wrong bspot .. unless, to drop off flyers .. good luck in ottawa!!

It seems like although things are moving towards diagnosis and treatment for MS and CCSVI. I am seeing the doors closing rather than opening here in Canada. One of the clinics in Montreal that was doing the imaging and screening for CCSVI has been shut down and is awaiting approval to continue with the Doppler imaging on MS Patients.



I am an MS patient and I want to know if there is hope to seriously impact on my health. Knowing that I could have insufficient flow of blood through my brain, CCSVI, is apart of that. Other vascular deficiencies get investigated! It is the fact that patients with the deficiency are going unscreened because they have MS. Know other reason, just the stigma now of having MS. Shutting down Private clinics closes doors and forces us who can't wait as we degenerate further to look abroad and throw up our hands and demand why?

Just watched Denis Lévesque at LCN. I'm going to cry that's for sure.

PRESIDENT OF THE COLLEGE DES MEDECINS SAID

''If people go in Poland to be treated, our public system will have to take charge of them if complications occur after they come back to Canada. Such complications could be restenosis''

WHAT? Restenosis a complication, could you please tell me I'm dreaming here. He also said that it makes no sense to allow people to see if they have collapsed veins because everybody in the province (healthy people) might want to check their just to be sure and this would overload clinics. Come on! We are talking about MSsers that have been diagnosed and have freaking lesions in their brain not healty people that have nothing to do with CCSVI..

He said that you only have to say that you don't have MS to have such test. HE SAID THAT!!!!!

He also said that they don't want MS people to be foolish... Come on, we still have a brain even if we have MS moron!

Naturally he also brought back the Buffalo study and blablabla.

Wrap up:
Pathetic, misinformed (a joke), Insulting

Who is the president, btw?
Don't tell me that moron Lamontagne guy I heard speak on one of the protest clips because boy, did I have a few things to say to that jerk!
a

Oh, I do!

I have an appointment there next January - which will be six months after my procedure. I don't intend to say anything about my status until after my examination. I might even wait for after the MRI...

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My name is not really Johnson. MSed up since 1993

hee hee hee

Love our sinister plans!

The fun we shall have with those standing in our way right now!

Tell them to stent their brains to open up their minds!

Yes, Yves Lamontagne. I honestly don't think that things will move foward with people like that. How could you show up for an interview without being more informed on the subject.

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Je pense que ces personnes se pense au dessus de la masse et que la plupart s'en foute carrément et ne cherche même plus à faire évoluer leurs connaissances et se croient très très auto-suffisants. Non je n'ai pas étudié en médecine mais je suis allé à l'Université en science et assé longtemps pour apprendre que je ne connaissais rien et que c'était important d'avoir l'esprit ouvert.

En passant, Zamboni a commencé à publier depuis 2006 à propos du CCSVI. PERSONNES à la société n'a même publié les résultats sur leur site. C'est très normal puisque les aviseurs sont du genre Freedman, très très auto-suffisant.

Actually restenosis is a complication of stents or ballooning. The slight injury to the venous walls promotes hyperplasia or growth; this is how the stent grows into the walls and becomes fused but the growth can also keep going and block off the vein or inside the stent.

So I guess the idea is that you're taking your perfectly fine (tortuously restricted) veins to Poland, getting this treatment, and then will need follow up treatment in Canada to unclog the stent if it restenoses. This actually could be a positive statement: it implies that there will be treatment in Canada for people with stents that restenose or clog up, because a clogged-up stent is a recognized condition, whereas CCSVI is not...hope that this turns out to be true.

I am like others encouraged by CCSVI being discussed in Parliament in Canada and openly in the media...it is still very under the rader here in the US...makes me feel like I'm a little cracked, as my friends only know about it from me.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Cece,
the guy doing the TV show has a young sister having MS, this is why he talks about it every 2 weeks. Don't know for the US but I tought that you were at a more advenced stage with doctors performing such surgery (recently shutted down).

Why it'S so slow, I don't know.

Marc

Cece,
I giggled when I read your post. Back in March 2010, my son-in-law presented me with his copy of the Napa, CA; USA newspaper with the March AP article on CCSVI in it and said, “It’s ALL here, everything you’ve been telling us about, CCSVI, Dr. Dake, Dr. Zamboni!”

I felt vindicated, I wasn’t making up stories!

Lora

What if, as suggested many times before by Cheerleader, you were to approach the clinic with a prescription for a Doppler from your doctor because she (or he) is suspecting IIH (idiopathic intracranial hypertension) ?

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RRMS diagnosed '92; both IJVs ballooned and stent in azygos March 31st in Katowice, Poland.

Marc, yeah, there's more going on in terms of under-the-radar procedures happening and studies being started, but media awareness or interest in it is very low, whereas it seems in Canada just the opposite (no procedures happening but everyone is aware of CCSVI).

Ruthless67, lol, exactly!!

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

I found a new clinic in eastern Canada. I'm there next week. I will not divulgate the name of the clinic here. Send me a PM for more info.
Thanks.
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J'ai trouvé une autre clinique pour un scan à Montréal, je suis là la semaine prochaine. Je ne vais donner le nom publiquement. Envoyez moi un PM pour plus d'info.
Merci.

Sorry, they called me back saying that they don't do such test? Well everything was all set this morning and this afternoon it doesn't work.

#1/"/"/%?&* off!

Sorry for the bad info.

Yes! Since I had an appointment before they shut down the clinic (college des médecins), I'm authorized to have my got damn doppler test in 2 weeks.

Let's burn!