In Bologna-Dr. B.B. Lee (vascular surgeon from Georgetown who headed up the international panel naming CCSVI lesions as truncular venous malformations) explained the difference in length of time and disease progression as it related to Budd- Chiari, which is a liver disease due to venous insufficiency.
Although Budd Chiari is due to a congenital truncular venous malformation, it takes many years to manifest as damage in the liver. There are pediatric cases of Budd-Chiari, and geriatric cases of Budd-Chiari. But the average time the disease is discovered is mid-thirties. It is a chronic, ongoing condition. And by the time it is discovered, the liver is severely damaged and often needs a transplant.
Vascular surgeons know that although the venous system is able to reroute and is redundant, the body can only overcome so much slowed drainage from an organ. The slowed perfusion and mean transit time harms the organ over time.
There are no brain transplants available....which is why finding venous stenosis and insufficiency in the CNS is so very, very important.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09