This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 10:11 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 52 posts ]  Go to page Previous  1, 2, 3, 4  Next
Author Message
 Post subject:
PostPosted: Sun May 02, 2010 2:38 pm 
Offline
Family Elder
User avatar

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC
All the best, esta!

I will be following you to Katowice in June.

_________________
My name is not really Johnson. MSed up since 1993


Top
 Profile  
 
 Post subject:
PostPosted: Sun May 02, 2010 3:53 pm 
Offline
Newbie
User avatar

Joined: Sat May 01, 2010 3:00 pm
Posts: 1
Hello My Friend,

Thanks for the link to this site. I see you already have so many supporters of your journey.

I have been a friend of Estas for 18 years and am so proud of her and the journey she is embarking on. Esta is one of the most positive people I know and she has shown me how determination and attitude makes or breaks your life. She is an inspiration to all of us here and holds a special place in my heart. My thoughts and prayers are with you all the way!

I love ya girlfriend.
D
Good fortune shies away from gloom. Keep your spirits up. Good things will come to you and you will come to good things. ~Glorie Abelhas


Top
 Profile  
 
 Post subject:
PostPosted: Mon May 03, 2010 12:29 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 02, 2010 4:00 pm
Posts: 290
Location: SF Bay Area, CA
"Tired reading"? Are you kidding? I am logging in day after day searching for new testimonies and thanking people who post them!

Wishing you the best outcome and keeping my fingers crossed for you

Image

Please keep on posting!


Top
 Profile  
 
 Post subject:
PostPosted: Mon May 03, 2010 3:22 am 
Offline
Family Member
User avatar

Joined: Tue Dec 15, 2009 4:00 pm
Posts: 73
Location: Knutsford England
Good Luck to you. You will be in my thoughts & prays, With all that have been done, Or like myself waiting to be done.
Please keep us posted.
Thanks.


Top
 Profile  
 
 Post subject:
PostPosted: Mon May 03, 2010 6:01 am 
Offline
Family Elder
User avatar

Joined: Mon Oct 03, 2005 3:00 pm
Posts: 900
I will be checking back on your progress, but I think you should hope for, but not expect a miracle. I just don't want you to be disappointed, if you aren't dancing after the procedure. My husband had his "liberation" almost 5 months ago and he remains fairly the same. Despite that being not so great, we are happy if he does not get worse!! I think benefits will depend on your specific issues, and I hope yours will be resolvable. Good Luck!


Top
 Profile  
 
 Post subject:
PostPosted: Mon May 03, 2010 4:26 pm 
Offline
Getting to Know You...
User avatar

Joined: Thu Jan 21, 2010 4:00 pm
Posts: 14
Looking forward to all your posts!!! Will be up your way in early July. Hoping to see you and R for a bite and a good yak. Deepest prayers each day, sent your way.

Itsa


Top
 Profile  
 
 Post subject:
PostPosted: Mon May 03, 2010 4:33 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
esta... I hope that this will help you !! I'm crossing all my fingers and toes for you and am looking forward to hearing all the details.

ozarkcanoer


Top
 Profile  
 
 Post subject:
PostPosted: Mon May 03, 2010 5:41 pm 
Offline
Family Elder
User avatar

Joined: Fri Feb 05, 2010 4:00 pm
Posts: 228
All the best to you, Esta-- look forward to hearing about your experience!


Top
 Profile  
 
 Post subject: Day -1
PostPosted: Tue May 04, 2010 2:06 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 380
Location: Summerland. BC Canada
Day -1

Here we are in Katowice, 1 day before my MRV and Eye Exam appointments and 2 days before the big procedure!

It was a long journey and having to sit up for 36 hours my feet are very swollen. We all took Arnica for our jet lag and so far it has worked well as I feel good today. I think we will all be having a nap this afternoon though...

Beautiful hotel, had a nice breakfast this morning and bumped Mark77 & DL! It's neat to meet people who are all here and excited to have this procedure even though we are all probably scared deep down.

The taxi driver picks us up at 8am tomorrow morning, stay tuned...

Esta

PS I think there's going to be a party up in SkyBar tonight!


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 04, 2010 3:10 pm 
Offline
Family Elder
User avatar

Joined: Wed Nov 04, 2009 4:00 pm
Posts: 110
all the best with MRV and eye exam :D

_________________
You might find that you’re not lost


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 04, 2010 7:37 pm 
Offline
Family Elder
User avatar

Joined: Sat Nov 28, 2009 4:00 pm
Posts: 115
Location: Spokane, Wa
Have a wonderful couple of life changing days, Esta! It will happen! :D

_________________
41 years old, dx 1998, current EDSS 6.5


Top
 Profile  
 
 Post subject: Day 1
PostPosted: Wed May 05, 2010 10:16 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 380
Location: Summerland. BC Canada
Thanks to everyone for all of the well wishes!

Day 1

Last night all of us MS'ers got together for drinks at SkyBar and chatted the night away. None of us were worried about todays coming events.

Make sure you check out all your electronics and understand how they work with the higher voltage. We made a mistake and ended up frying the charger for my chair! Thankfully Euromed has been fantastic and has found us a replacement!

In groups of 3 we went for our eye exam in the morning and all got our printouts. Then we came back to the hotel until the afternoon when we went out in another group of 3 for the MRV exam. The MRV exam was 40 minutes away in a small mining town. It was the oldest hospital I have every been in, but it had the most up to date equipment.

The MRV was very loud, even with earplugs in. I just closed my eyes and did what she said. Make sure you don't move! We all got our CD's with the information and got driven back to the hotel. Even though I have all of the information, I don't know anything yet and wont until tomorrow when I get my doppler, blood test, and procedure done.

The drivers were great, they stay with the group the entire time and meet everyones needs. I really feel like they are taking good care of us.

There is no eating tomorrow, so we are going to go get a big, late dinner like everyone recommends!

Esta


Top
 Profile  
 
 Post subject: Day 2 & 3
PostPosted: Fri May 07, 2010 1:38 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 380
Location: Summerland. BC Canada
Day 2 & 3

Which is really Day 1 after my procedure.

We were picked up at 8am and all 6 of us arrived at the hospital. We saw the others from the previous day leaving. We were quickly split up into 2 rooms and poked and prodded to get the blood tests right away. Once that was done we were put into our own bed to wait for the Doppler. Before the Doppler, a neurologist stopped by interviewed and examined all of us. Then Dr. Simka came by each of us and did the Doppler. I found out that my left jugular was OK, but my right had problems and they would find out more once I was in getting my procedure done.

Once in beds, they hooked us all up to an IV and gave all of the women catheters. Then we had to wait. I was last of the 6 to be liberated!

I thought going in I would need 3 stents since my MS is so bad. Turns out my left and azygos veins where clear and didn't need anything. My right jugular was restricted and they did the balloon angioplasty on it. They used a 12 x 40mm balloon what ever that means... The angioplasty held very well on the first try so they didn't need to put a stent in. The operating room was incredibly high-tech!

Once it was over we were moved back to the beds for the rest of the night. 6 hours later, we all got some dinner. After the procedure I was having a heart arrhythmia (irregular heart beat) and was hooked up to a monitor and given some drugs by a cardiologist who came by to look at me. They seemed to make me feel quite ill and I couldn't eat any of my dinner. It did look quite though, perogies, meat, cheese, and some bread. Once done, it was lights out.

The night was difficult as I was not feeling well. Unfortunately most of the nursing staff did not speak any English so I couldn't explain what was wrong with me or what was going on. Even though we couldn't communicate, they were still very nice and comforting and managed to find someone that spoke a little or at least new the word vomit! They have me an injection of something and it sure made me feel better. The doctors speak English, just not the night nurses so it would have been good to have some Polish for things like nurse, headache, sick, vomit, etc.

No one really got much sleep. You have to sleep on your back only and they wrap a band around your legs where the incision was so I was uncomfortable. Rough night but I made it through. The drivers showed up at 8am to take us back to the hotel. Once back, I grabbed a bit of breakfast and headed up to my room to write this and relax. I feel much better now and am looking forward to going out for some fresh air in a bit.

How I Feel:

First off, I felt disappointed with only one ballooning and no stents thinking it should be more. I thought it would be a miraculous cure and I would feel way better instantly. The doctor told us it would take 3-6 months for changes to really happen.

Already there has been some good signs. At night in the hospital I was complaining that my feet were hot. When they took my socks off my feet were warm and pink instead of cold and purple as usual! Since the procedure I have been warm/hot all the time which is not "normal" as I am always freezing cold, even my hands are warm. I even wanted to buy a big parka before the procedure and now I definitely won't need to! Also, I was able to fire up my electric toothbrush on my own this morning which I couldn't do before. Some little improvements, but I have hope that things will continue to get better over time.

More updates to come!

Esta :D :D


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 07, 2010 6:32 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 380
Location: Summerland. BC Canada
i must babble since i forgot to mention there were 5 canadians and 1 from the uk in our group...also, the morning before, at breakfast, the guess who were playinbg on the music..good omen perhaps :D ..


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 07, 2010 2:07 pm 
Offline
Family Member
User avatar

Joined: Mon Mar 14, 2005 4:00 pm
Posts: 81
Lynyrd Skynyrd?


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 52 posts ]  Go to page Previous  1, 2, 3, 4  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. stented in poland - esta tries again

[ Go to pageGo to page: 1, 2 ]

esta

18

2500

Sun Oct 03, 2010 11:01 am

Zeureka View the latest post

There are no new unread posts for this topic. esta restenosing after may 6th procedure, katowise, poland

esta

14

1540

Tue Jun 01, 2010 8:14 pm

esta View the latest post

There are no new unread posts for this topic. 7&8 June - Poland. My turn!

[ Go to pageGo to page: 1, 2 ]

mtf

29

2111

Mon May 24, 2010 12:56 pm

Zeureka View the latest post

There are no new unread posts for this topic. My wife's turn next week in Poland - am I dreaming or not?

[ Go to pageGo to page: 1, 2, 3, 4, 5 ]

Ernst

69

9312

Sun Feb 17, 2013 6:33 pm

CureIous View the latest post

There are no new unread posts for this topic. fiddler finally flying... to Poland

[ Go to pageGo to page: 1 ... 6, 7, 8 ]

fiddler

118

14572

Sun Nov 28, 2010 3:07 pm

Zeureka View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: