esta and poland - finally my turn

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

esta and poland - finally my turn

Postby esta » Sun May 02, 2010 7:16 am

OMG this is it...i'm flying out on the longest and most exciting journey of my life. its early morn, quiet and in 36 hrs i'll be in katowice, with a one day lay over before my miracle begins. i have PPMS, in a wheelchair and 1 finger typing, let alone the fact i can't do much on my own, needing assistance for almost everything. SOOOO for all the doubting thomas's PAY ATTENTION...i expect lots...and even though people are probably tired of reading another Poland procedure, i've waited for 6 monthes to have mty own post...packing was difficult, with the portable electric chair, bed bar, lambskin, slippery sheet etc, but we're ready! This is my moment...
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Postby PCakes » Sun May 02, 2010 7:30 am

wow!! go go go..and nooo!! I, for one, am never tired of reading these adventures!! So excited for you.. ! with a little extra as you are from beautious B.C.
Please update as you can.. travel safe and wishes for the best outcome possible :)
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Postby ErikaSlovakia » Sun May 02, 2010 7:34 am

Good luck, Esta! :)
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby sunlounger » Sun May 02, 2010 7:37 am

Hi esta,

wishing you a safe journey
hope I will get a chance to meet you I arrive 6th
please keep us posted good luck :D
You might find that you’re not lost
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Postby mags4short » Sun May 02, 2010 8:02 am

Good luck Esta,

See you Tuesday eve in the Sky bar, the drinks will be on my hubby.... shhh I haven't told him that yet :)

See you there!!!

Mags x
Alone we can do so little, together we can do so much :)
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Re: esta and poland - finally my turn

Postby cah » Sun May 02, 2010 8:40 am

esta wrote:...and even though people are probably tired of reading another Poland procedure...

Esta, it isn't just another Poland Story. It's YOUR story, and every story is different and thus special! (If someone's really tired of those stories (I just can't imagine how), he just won't click the thread.)

Wishing you a safe journey and every possible improvement!


"There is only one good, knowledge, and one evil, ignorance." Socrates
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Postby Brynn » Sun May 02, 2010 9:05 am

Esta, have a fantastic trip! I am a week behind you on the 13th! Good luck to everyone!
41 years old, dx 1998, current EDSS 6.5
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Postby Katie41 » Sun May 02, 2010 10:41 am

How exciting for you! You are truly embarking on a wonderful adventure! Enjoy every moment! Each person's journey contributes to increased knowledge, ultimately leading to treatment for all who desire it.

So many people who have posted on this form have impacted my, my family's, and countless other lives, tremendously: from the most mundane things regarding the procedure (thanks Brynn and many others); to the amazing research Cheer continues to find (thanks for your voice of reason, too); to the hope and great vision (thanks Dr. Zamboni, Dr. Dake, Dr. Simke, Dr. Ludyga, Dr. Mehta, Dr. Sclafani-isn't it great that the list is getting so long that it can't be properly put in a posting?); and especially to people like you Esta (thanks Livabird and others) for your enthusiasm, joy, and hope. Thanks to all who share their experiences, knowledge, and research. You are making such a difference in the lives of so many people throughout the world. :)
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Postby Cece » Sun May 02, 2010 11:30 am

Wishing you all the best! Everyone's story is as important as it gets.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Vhoenecke » Sun May 02, 2010 11:35 am

Esta, I am here from Saskatchewan, Canada. I am still in Poland visiting the city of Krakow and I leave on Tuesday the 4th to go home. So many of us here had positive experiences. Those with PPMS still noticed a difference right away after the procedure. It feels like someone turned on the lights. The doctors here are fantastic. Have a great trip and I look forward to hearing from you after the liberation. Do not have any worries all is great here.

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Postby mangio » Sun May 02, 2010 11:45 am

Hello Val in Poland,

Thanks for the updates, so nice to hear from you and Fiddler.
Really hoping this is all you hoped for.

Went to Direct-MS event on 30th - really good, almost
900 people!

What I could not believe was the one new MRI showing
how we don't have as many veins as normal controls - yikes.
My husband chuckled at that and said now that explains alot!

bye for now
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Postby PCakes » Sun May 02, 2010 12:16 pm

please 'scuse the interruption.. as this string is truly 'well wishes' for Esta..

Mangio.. have you expended on this vein comment elsewhere?

back to regular programming now...:)
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Postby shye » Sun May 02, 2010 12:28 pm

All best wishes to you Esta! And also to you Brynn, Sunlounger and Mags4short!
Please keep us posted....
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Postby mangio » Sun May 02, 2010 1:02 pm

Sorry PCakes actually thought I had PM that to Val - hit the wrong button
obviously. About the vein research mri, you will be able to see it on-line
on the Direct-Ms website - presentations (I think) soon I'm sure.
Hope your event goes well next week and of course lots of fingers
crossed for Esta.
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Postby PCakes » Sun May 02, 2010 1:26 pm

oops..and i only meant to apologise for my own interruption.. oh my.. but..thank you for letting me know to look on direct-MS site.. will do..:)
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