CCSVI BLOGS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI BLOGS

Postby LR1234 » Sun May 02, 2010 10:42 am

I thought I would make a thread so we can have a list of all the bloggers on the CCSVI journey (video and written blogs).

So if you have a blog (somewhere other than on TIMS) and you are on the CCSVI journey please post it here.
I will then add it to this top post.

Loobie's http://myhopefuljourneyintoactualmsreco ... gspot.com/

Sunlounger's blog http://ccsvisunlounger.blogspot.com/

Marc's http://www.wheelchairkamikaze.com/2010/ ... edure.html

www.my-darn-ms.blogspot.com

http://www.enjoyingtheride.com/search/l ... ment%20Log Mitch's Blog

http://www.desidi.blogspot.com/ Diana Gordon

http://vhoenecke.blogspot.com/

Lucky's blog http://mymsliberationprocedure.blogspot.com/

Patient Diaries
http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2989

http://freedom-from-ms.blogspot.com/

Thornton Brothers (Canada)
http://evanthornton.wordpress.com/

Here's a doctor in the US who has been treated:
http://markkalina.blogspot.com/

Ginger- Canadian who went to Poland and is now major CCSVI advocate
http://iamsickofms.blogspot.com/

Tisa--a woman in southern California who went local- to Arizona
http://www.blogger.com/profile/10244871897694190882

http://www.fightforccsvi.blogspot.com/

http://www.medhelp.org/user_journals/list/333672 (Shoshin's blog)

http://for-greet.squarespace.com/

http://lovehopemiraclesccsvijourney.blo ... -ugly.html
Last edited by LR1234 on Thu May 27, 2010 8:42 am, edited 21 times in total.
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Postby lucky125 » Sun May 02, 2010 10:44 am

Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby Katie41 » Sun May 02, 2010 11:00 am

Lucky,
Would you post your brain discovery on a seperate thread on this forum? I think it would be quite helpful for everyone. I would copy it and do it, but I'm computer challenged (nothing to do with MS) :lol: . Great observations!
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Postby lucky125 » Sun May 02, 2010 1:57 pm

Katie41 wrote:Lucky,
Would you post your brain discovery on a seperate thread on this forum? I think it would be quite helpful for everyone. I would copy it and do it, but I'm computer challenged (nothing to do with MS) :lol: . Great observations!
Katie41


Um... You make me sound so smart, I feel kind of stupid because I have no idea what you are talking about!

I'm happy to help if I can. Will you give me some more info, please?

Thanks!
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby cheerleader » Sun May 02, 2010 4:14 pm

Patient Diaries
http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2989

Thornton Brothers (Canada)
http://evanthornton.wordpress.com/

Here's a doctor in the US who has been treated:
http://markkalina.blogspot.com/

Ginger- Canadian who went to Poland and is now major CCSVI advocate
http://iamsickofms.blogspot.com/
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Katie41 » Sun May 02, 2010 4:36 pm

Lucky,
Your most recent posting on myliberation adventure.blogspot. I didn't want to paraphrase it because you explained it so well.
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Postby cheerleader » Sun May 02, 2010 4:42 pm

Tisa--a woman in southern California who went local- to Arizona
http://tisasmsliberationexperience.blog ... ccsvi.html
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby bestadmom » Sun May 02, 2010 5:35 pm

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Postby EnjoyingTheRide » Sun May 02, 2010 7:05 pm

bestadmom wrote:http://www.enjoyingtheride.com/ - Mitch's blog


Thanks bestadmom. I write about a lot of stuff. My CCSVI journey is documented here: http://www.enjoyingtheride.com/search/l ... ment%20Log
Mitch
Please visit my blog at www.enjoyingtheride.com
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Postby jackiejay » Sun May 02, 2010 8:34 pm

Just wondering why the Thornton brothers haven't posted anything lately?.....hope they are both doing well.
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Postby LR1234 » Sun May 09, 2010 5:43 am

If there are any other blogs I have missed out on please let me know x
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Postby shye » Sun May 09, 2010 6:04 am

there are already a number of repeats--maybe LR if you could edit your original post periodically to include all of them, so we don't wade thru loads of repetition???? (and just maybe there will be too many to do so easily :lol: )
Thanks
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Postby LR1234 » Sun May 09, 2010 7:23 am

I have, I have added everyone's suggestions into my top post.
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Postby Vhoenecke » Sun May 09, 2010 8:05 am

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ccsvi blog

Postby caraboo » Sun May 09, 2010 9:15 am

Val,

hI cant wait to get to Poland, Two weeks today. You have given me wonderful ideas for when i am there, thankyou. Also so happy for you for all your improvement, I wish you all the best.


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