Stayfit wrote:The problem of getting treatment for CCSVI is relevant to the larger national discussion of Health Care Delivery in general. Although elected representative ostensibly write and implement legislation, who influences their decisions. Many folks here, have been raising the question of drug company's political influence because of there financial interest. And further raise 2 questions, if treating CCSVI is far less expensive than drug treatment and there have been so many examples of great results what is really holding back diagnosis and treatment? Dr. Zamboni spoke the other day of his love of science, seeking the truth and his desire to bringing people together. My desire, is to follow that path on the way to treatment and an improved life.
I do agree with you that the pharma industry has a lot of influence on our legislators, but I also think there are a lot of great doctors out there that will be more than willing to help MS patients as soon as the ongoing studies prove the CCSVI theory. As much as I believe in the CCSVI theory and I do believe it 100%...it is still a theory that needs to be tested in the medical society, and then, a safe treatment protocol has to be established. Even in my son's case..yes, he did have lots of narrowing in his major veins, and yes they have been opened, and yes he is feeling much better. Now we have to wait and see if they will remain open, and if they don't...no one really knows of a totally safe way to treat them. I've read that there is someone out there designing a stent that will not travel in veins, and I'm really hoping that's true and it will be on the market soon...but it isn't available right now.
Dr. Zamboni states in one of his interviews that his wife has been MS symptom free for more than 4 years now after her liberation, and I'm hoping I can say the same thing about my son in 4 years...and then 4 more years, and 4 more year...etc. etc. You have to hang in there, the answers are coming.
However...on the other hand, if I were in an unstable situation regarding my MS...I would take a very proactive approach and find a doctor willing to test and treat...even if I had to pay for it myself...even if I had to go overseas. That's just me and you may feel differently.
When I think about how fast this happened for our son...it's hard to believe...considering we only learned about CCSVI 5 months ago. I can't speak highly enough about his fabulous doctors!!