A quick update before I start unpacking
We set off from Poland yesterday at 8 which is 7 our time. Did the airport, flying and arrived back to the car to find a flat tyre! After a delay of a couple of hours until we got that sorted we headed home and arrived at 4.30PM.
Went for something to eat with family, then at 7.30 I had arranged to meet a few MSers in the local to give them an update on Poland. I left there at 11.30 PM by which time I was TIRED but not EXHAUSTED/ fatigued.
Previous to this I would have needed to lie down after the airport never mind anything else!!! Now maybe I am still on a high, maybe it is the placebo effect, maybe the blood thinners are doing strange things, maybe, maybe maybe. I do not have a clue. All that I can say is that the fact that I went to Poland, was told maybe they could do something about it. Met some wonderful people and experienced a shared sense of hope with others in similar situations. This in itself has been something that I would not have dreamed of 18 months ago. So at this moment in time I can say it was worth every penny.
The whole thing was well organised and Euromedic are working on making things easier for overseas patients, this will all take time and they have come a very long way in a very short space of time too.
For myself all that I can do is be patient, I still have a UTI, problems with my arm and shoulder and a few other things, but these things are nothing new to me. I am hoping that they will ease off and that I will notice more improvements as the days progress.
I will give it a few days then post on the tracking thread and keep a close eye on everything. I am expecting highs and lows for a while and it will be interesting to see where I am in three months time. If I am still in the same place then it will be a result as it would mean that I have not gone downhill and stayed there
Here's hoping that this renewed energy stays put...
Alone we can do so little, together we can do so much