Coolcatcarrie wrote:Hi mags
This is my first post here, read ur post and thought would share my Glasgow experience! I went for scan in august, the guy that does the scanning was very good and had been for training with zambonis team in Italy, I then saw dr gilhooly who was fantastic and I got more out of him than any appointment I've ever had with my neurologist! He didn't push Ldn at all I brought it up towards the end of my appointment as I had heard good things about it, so I went for it and again it's done so much more for me than anything my neuro has offered! Lol. I was found to have ccsvi and I am on the list waiting to be treated, I had two appointments in other countries in reserve incase they didn't find ccsvi but they did so I cancelled and I felt in good hands with the ehc! Sorry to go on! Heehee but im v excited!
ClaireParry wrote:Hi Mags,
Glad you are going back. Me too!! 3rd November.
I've been in touch with someone over there at the moment and it seems the Euromedic team have made some real improvements. For example, they are starting the operations earlier in the day and only making you lie down for 6 hours.
Also, they are checking the Azygous and doing a discharge Doppler the morning after.
esta wrote:hi mags
yeah, a date. Ohhh the fog...gone is best!!!
it always seems forever, but it's not that long really is it. what a lovely xmas present.
i love what clareparry said, no overnights. i know i swore i'd never go back if i had to again. buuuuuutt, i have a tailbone problem. i got the doppler after when i went back, so the new 6 hr thing is a really great addition. you'll love the changes, and feel so confident.
good luck with the councelling sevice too, sounds fab. i wish our chapter had someting like that. we have suppor groups, i guess thats good too.
whatever happend with scotland?
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