This Is MS Multiple Sclerosis Community: Knowledge & Support

For you Stentoteers: Did Dake check and treat the azygos vein in your venograms? I only read about specific treatment of IJVs.

Just curious.
Thanks,
Nicole

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Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com

Yes--he went up and around and thru the azygos in Jeff--found nothing. But we weren't expecting anything either, since Jeff had over 20 brain lesions and no spinal lesions, and all of his issues were cognitive/brain related. Hope others chime in-
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Yes, checked, no issues, and I do have spinal lesions. As I recall, unlike Zamboni, he has found very few with azygos issues.

I spoke last week with Dr Dake about the azygous vein. He said the best diagnostic tool for looking at it was a CT scan but that carried too much radiation to justify it's use in most cases. he said it is in a crowded area and it was difficult to visualize on MRV. However if you ask the MRI technician to inform you when she is taking the shot of the azygous and hold your breath as long as you can and stay very very still you can maximize your chances of getting a good image on MRV. Being very still and holding your breath is critical. He has found normal looking azygous veins on MRV and then was surprised to find stenoses there on venography.

The jugulars cause a back-up all the way through the system (including affecting the spine through the vertebral veins), so spinal lesions aren't necessarily reflective of Azygos stenosis per se.

It's when both IJVs and Azygos are stenosed there seems to be real trouble.

Time will tell though ...

Thats probably true. I had posted a question if spinal lesions always points to azygos involvement. I have lesions in both brain and spine. Somehow I feel that physical disability might be due to azygos involvement ...

It has not been replicated, but Dr. Zamboni found a pattern where those with primary progressive m.s. and all the physical disability that entails were likely to have azygous lesions. People with relapsing-remitting typically had more of a pattern of jugular involvement.

I personally have so-called mild rr m.s., with one brain lesion and one small cervical lesion, and my theory for myself is that I have bilateral jugular stenoses.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

I have sig. cervical lesions and tiny brain lesions and MS hug or banding. I heard one liberati experienced and end to her MS hug the min. her azygous was cleared by Dr Dake and it has not been back. She has zero symptoms now and could barely walk to the toilet at night or years. pain free, walks the dog 2 miles a day. I want that!!!

I want that to, I had the Azygos vein. It was unblocked and a stent placed there as the balloon was inadequate.

I have noticed great improvements but I still await recovery from fatigue and the ability to walk long distance.

I am happy though, as I have been LIBERATED!!!

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<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March

According to Dr. Sclafani, the azygos is difficult. He found no azygos stenosis or valve issues with the vast majority of his patients until he and his team tweaked the viewing angle of the venogram. It immedately changed the results and he started seeing azygos problems at a much higher rate.

I just had my liberation procedure done. My azygos was narrowed 80%. I thought I have RRMS. I have always felt like I've been on a downward a bit though...over the last couple of years.

My LT was done on May 11, 2010...only a few days ago.

Hugs to you all,
Caroline
Nanaimo, BC

PS This is only my 2nd post on "This Is MS"

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Diagnosed with MS on June 21, 2007.  I am very happily married to my hubby Geoff.  We have two beautiful munchkins...Erin (5) and Jackson (7).  I have been taking Copaxone injections since Dec. 1/2008

Congratulations Caroline & thanks for posting to share! Do you feel any different afterwards?

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Nothing was found in my azygos when Dr. Dake checked.

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

OH YES, YES, YES.
Dr. Dake treated me Oct,2009. The MRI/MRV showed some problems but before we went into Venography and the procedure Dr. Dake said there was more 'going on' than was indicated on the films.
So, during the Venography, he placed the Jugular stent , did a Jugular angioplasty but still was NOT happy with the flow. he kep saying Where is it? Where is it.?? They all studied the flows ,etc. It took a while before Dr. Dake YELLED and cheered THERE IT IS!! THERE IT IS!!
and sure enough, my Azygos was folded back on itself and the margins were not irregular. It was NOT easy to find and I am grateful to the man who is Cardio/Thoracic/IR, etc. etc. =DR. DAKE!! Take your bow!!
So, there is a stent in my Azygos now. All better!!
yes, ALL BETTER!!!!
Was that the question? Sincerly, Rose

Have all your symptoms gone? how do you feel now?
Do you have info posted on the post ccsvi page?