Liberation in 20 months and counting in .. Euromedic Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Liberation in 20 months and counting in .. Euromedic Poland

Postby Rialynn » Tue May 04, 2010 11:06 am

Hi
I am just on pins and needles ..... and don't mean because of my MS. I am checking my email hourly for anything new. I am reading through Thread after thread.I love to see such a collection of Sucesses. I Contacted Euromedic Poland and was put on their waiting list April 4 2010 was my first contact.

I had the fortune of looking through the email and I spoke on facebook chat with Patrikia at the Clinic She was able to tell me that I might see a treatment date in Dec 2011. 20 months. i can't think of a better Christmas gift. I know the line may get longer. I was just wondering if those who have dates know how long they were on the list.

I am hoping this thread will help myself and others in the wait to see that the line is moving and Liberation is going to happen.
Last edited by Rialynn on Tue May 04, 2010 1:36 pm, edited 1 time in total.
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Postby Rialynn » Tue May 04, 2010 11:29 am

On April 30 I was able to get pre screened, and it showed positive for CCSVI. I will get the full report on May 11. Now I am even more excited but has raised some more questions.

If there is a study. Do I join it hoping for the treatment procedure and if they do and only do plasty vs Stents? am I going to be able to be re treated if they close agian or

Do I wait and see the team in Poland who has Liberated more MS patients vs someone who is working on a study find than me as an individual .
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Postby Cece » Tue May 04, 2010 12:27 pm

Rialynn wrote:Do I wait and see the team in Poland who has Liberated more MS patients vs someone who is working on a study find than me as an individual .

It's hard to say...personally I'd get on as many lists as I can, so that you can say yes or no when your name comes up on the list. Twenty months is a long time to wait. On the other hand, if your case requires stents, there are not as many doctors outside of Poland who are doing stents. Best of luck and health with whatever you end up doing!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Re: Liberation in 20 months and counting in .. Euromedic Pol

Postby Pepe » Wed May 05, 2010 2:09 am

Rialynn wrote:I Contacted Euromedic Poland


Hi Rialynn,

As you can see below my wife was liberated on January. She is doing well. These days I have sent several e-mails to Euromedic to ask for an appointement to do a follow up exam in summer... but the server rejected all of them. Last year, I contacted with Dr. Simka directly. Now, it seems that we have to contact with Marta Cyba, the patient coordinator, but I do not why the server is rejecting all my e-mails ...Could you or someone else help me? Must be a technical problem...I do not know...

Thanks in advance for your help.

All the best to you.
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Algis » Wed May 05, 2010 2:24 am

Make a new email - Take Gmail/HotMail or the likes; many other servers/IP range of addresses are flagged as 'spammers' (nothing to do with our quest).

Hope it helps :)
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Postby Pepe » Wed May 05, 2010 2:49 am

Thanks Algis,

I'll try it.

Regards,
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Rialynn » Wed May 05, 2010 10:53 am

I used my facebook to contact them I am not sure if that helps. I was logged in one Afternoon(900pm poland time) and found the Chat link open at the bottom of my facebook.

I was able to chat directly with someone there.
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