This Is MS Multiple Sclerosis Community: Knowledge & Support

Events happening in UK, Boston, Canada--
for information:

Link to Facebook:
http://www.facebook.com/pages/CCSVI-in- ... 0796282297

link to Liberation Day activities

Link to CCSVI locator for other local events--
http://ccsvi-ms.ning.com/

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Watch Canada AM "live" tomorrow morning to hear information about Liberation Day across Canada--

http://www.ctv.ca/canadaam/

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Here is Diana Price-CCSVI activist-speaking about her diagnosis with dual jugular stenosis. Rallies are being held around the world today--get involved-
CCSVI is a vascular condition, with neurological consequences. Treat the vascular disorder and separate treatment from research studies. Because dual jugular stenosis is a serious condition. (Ask Jeff...)
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link to interview on CTV

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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Thanks for the pictures...I wish I could have participated in something, but I do not know of anything organised in France and I do not know the "rules" about demonstrating here. Would have loved to have taken a stand, though.

Whoever invented Cinco de Mayo is going to be furious that we took his day. Just kidding .

There's a picture in this ctv article that shows the size of the crowd:

http://www.cbc.ca/canada/story/2010/05/05/ms-rallies.html

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

I notice the Nova Scotia politition would not be swayed...she said no other province was doing the testing....well what is she a sheep? Is that all that is necessary to get her to act? Move the demonstration to in front of her house.

just saw coverage on the bc cbc news. Not national but still

Great job everybody! It's very exciting to see!

It's so frustrating hearing the same old thing though - "needs to be proven". There have to be other ways to prove effectiveness than the old large-scale-double-blind-gosh-someone may only think that they don't need to sleep 16 hours a day anymore but it may be placebo-trial. For example, reports from treated patients should be documented by a research center now.

Incidentally, the Andy Weiler quoted in the CBC article I believe is the same person who started out as a news reporter in my small home-town in Ontario, nor has he reported on health for very long. I'm sure that he does not have a science background of any kind. Why is he sounding so authoritative about evidence-based medicine? I kind of thought he was a twerp when he was on TV, so it irked me to hear his comments. Just a personal bias, I guess.

..that's just amazing! Many thanx to WaYnE! http://www.facebook.com/ccsvi.ms.toronto.canada

I'm from Nova Scoita and I know who I won't be voting for in the next election!!

http://news.google.ca/news/more?pz=1&cf ... HM&topic=m

Gordon

So, what happened in Boston, or is that on a different day?

Boston had a rally on Beacon Hill as part of an MS awareness day. There was no press, but a group handed out information cards to attendees at the NMMS event, from Facebook-


cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS