first steps towards CCSVi South germany, YIPPPEEEE

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

first steps towards CCSVi South germany, YIPPPEEEE

Postby coin » Wed May 05, 2010 5:46 am

Just wanted to inform that we finally found a doctor ( he is so cool and nice) , which name i will not reveal, who is quite interested in doing all the tests and possible treatment etc...He already started contacting Zamboni, can you believe it, all by himself...so we are now waiting that he collects all the information he needs ( thanks to Joan ,Dr. Sclafani and Dr. Schelling already for helping) and then he will start with the doppler......and his time line to do the Doppler is within the next 2 weeks...YES WE CAN!!!;-))am so freaking, fucking excited....need to hold my horses....but as some others said alread before thanks to TIMS I had the enthusiasm and energy and faith to contact and pest doctors here in South germany ...will keep you informed ybout the progress:-))
COIN
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Husband MS
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Postby adamt » Wed May 05, 2010 5:54 am

this is brilliant well done coin :)

im trying to find someone who will do the CCSVI tests/treatment as my original appointment has been delayed even longer!

I appreciate you dont want to reveal the doctor but could you share how i can find these clinics that do the testing/treatment please?
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Postby ErikaSlovakia » Wed May 05, 2010 6:21 am

Hi Coin!
This is great news! :)
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby coin » Wed May 05, 2010 6:26 am

lets keep our fingers crossed that evreything will be fine.....:-))
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Postby mshusband » Wed May 05, 2010 6:28 am

Great job coin ...

and my usual comment ... CCSVI grows just a little more.
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Postby coin » Wed May 05, 2010 6:34 am

Danke schön und thank you....and could have not done it without my husband...
COIN
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Postby danegirl » Wed May 05, 2010 6:43 am

I hope you will keep us informed. I am in Denmark, and it is only a hop to Germany. How far south? I am on several waiting lists, but this would be the nearest.
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Postby coin » Wed May 05, 2010 6:44 am

Munich, which is kind of down south...ever been to the Oktoberfest??;-))
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Postby Cece » Wed May 05, 2010 11:36 am

well done, coin!! I am impressed with how every doctor has their one first patient, the one who brings them the info on ccsvi and their own stenosed jugulars to test the theory, and it may well light a fire in the doc and turn out to benefit far, far more than just yourself!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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