Liber8 wrote: First I want to let MSers know that if you are looking for a referal I would bet my paycheck you won't get it from any NEURO at The Minneappolis Clinic of Neurology in my area.
I can second this, at least at this time...my doc, Jonathon Caulkwood, is the one who told me about CCSVI theory a year ago. No joke. He didn't use the term CCSVI, but for the first time ever he took an interest in my I-think-my-car-accident-caused-my-m.s. story (at 16 I was a poor driver
and managed a slow acccident where the car flipped over...I was upside down for awhile, then fell on my head when I unbuckled...a few weeks later developed my first m.s. symptoms...Dr. Caulkwood talked about blood flow and new breakthroughs and iron and that it was all too soon...something we're hearing plenty of now, but this was over a year ago).
Anyway, when I brought it up in February, he had nothing good to say this time around. And again: it's all too soon...but I say if you can get yourself in a study and understand the possible risks, it is not too soon at all.
I happen to really like Dr. Caulkwood, he's smart and empathic and that's about as good as it gets, but yeah, don't bring up CCSVI unless you want to get an earful.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition