BooBear wrote:I have not had any luck with IRs or vascular surgeons willing to discuss CCSVI testing and treatment (even those that had any inkling what I was talking about).
I am getting frustrated, though I know I am not alone there.
Has anyone come across anything in the Midwest that may prove fruitful? I am more than willing to travel on my own dime, of course.
Thanks for your help! This board is a source of hope and sanity against a disease that has little of either.
Liber8 wrote:These Drs that have not been trained for CCSVI really have a hard time finding it unless it is very obvious.
Cece wrote:Liber8 wrote:...my m.s. is so-called mild and, if Buffalo results are correct that the worse your m.s. is then also the worse your CCSVI, I am concerned that mine might be harder to find. Still it is fantastic to hear of someone in my neck of the woods getting as far as the transcranial ultrasound!! If I may ask, are you thinking of going back for the MRV or are you making other arrangements?
JCB wrote:Same Neuro for me, I asked him for a referral to an IR. He wants to wait for the studies. His quote to me "If the studies come back and proove this is helpful to MS Patients I will be the first to give referrals." He said he has seen to many patients hurt by chasing possible dreams, my response, what else do we have?
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