This Is MS Multiple Sclerosis Community: Knowledge & Support

http://news.google.ca/news/more?pz=1&cf ... HM&topic=m

Gordon

"The MS community has spoken. They want access to diagnostics and treatment for CCSVI in Canada," said Linda Lumsden, chair of the national board of directors for the MS Society.

The MS society does not represent me, nor will they ever, and we have to have a watch dog that keeps these idiots under control.

Gordon

Gordon,

I couldn't agree more. Here's a post of mine from another thread that seems appropriate here as wel.

Hi all,

There is only so much "research funding" to go around. Do Canadian's REALLY want the MS Society to get the "Lion's Share"? I slept on this and I'm still having some personal turmoil over the various quotes below.

Quote:
Dr. Cohan, the director of the ms center in Portland, said the study at the university of buffalo was rigged because the results depended on how much pressure the tester would put on the vein.



Julian Burnside wrote:

Authors of company-sponsored research are more than five times likely to recommend the drug company’s products than are independent authors. Researchers with industry connections are more likely to favor the products of the company that sponsor them. ”


Quote:
Mark Freedman

"I think there are going to be millions of dollars spent now to follow a hoax.... "


Quote:
Richard Smith, Editor of the British Medical Journal

“How did we reach a point that so many doctors will not attend an educational meeting unless it is accompanied by free food and a bag of goodies? "


Quote:
Henry Miller

"it is possible that the disease lies buried somewhere in these lengthy protocols waiting to be found by someone ingenious enough to unearth it"



If the Canadian Government see’s it’s way to providing research funding for CCSVI I feel the health department, or whatever branch of government it is that oversees these things needs to be the one making the independent decisions about where those funds are dispersed.

The MS Society has already spent their way through millions of dollars, many times over, in the name of research. It’s time to give the funding DIRECTLY to the independent researchers and institutions, the individuals who have been ingenious enough to unearth and pursue this interesting theory. What we need is research, research and more research, but lets have it done by open minded researchers, NOT the naysayer’s!

Just my humble opinion and personal rant,

Lora

Fully agree with you Gordon and Ruthless.

They have held our health hostage by not doing any further research on CCSVI (an old idea, admitted by them) for years. They probably would not have done anything had they not been pressured by patients following W5's first story.

They keep patting themselves on the back for being the "first out the door" to launch the competition for research grant funding. The truth is, they only came reluctantly through the door because they had no choice with the patient and donor pressure. And even then, they have since gone out of their way to circulate incorrect information about CCSVI - all the while claiming to be "excited" about this new theory.

Their letters appealing for donation, the MS Canada recent publication all contradict enthusiastic statements made to media about CCSVI.

Sorry, didn't mean to go on and on. Just cannot believe their gall, and I seriously hope that there will be a watch dog (as Gordon suggested) monitoring their actions from now on.

Thanks for the posts.

As a Canadian tax payer, I am extemely concerned about the possiblility of 10 million of our tax dollars being handed over to the MS Society for research.

That organization denies knowlege of the research that has already been completed on the subject.

The CEO of the MS Society of Canada told the Canadian parliamentary sub committee on health last Thursday that he was not aware of the International uni0n of Phlebology, not to mention the document which was published by the organization months ago regarding the testing for and treatment of the vascular condition called CCSVI!