This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi,

for some time (maybe two years or so) I have a sensation of pressure/tightness left and right besides of my larynge. Especially during sports (I did some swimming) the sensation was most pronounced.

I once asked a doctor about it and after a sonography of my thyroid glad he said that the glad looked somehow irregular - different sizes on the left and right side and more perfusion that expected. All that might point to a hashimoto thyroditis - but the following lab-work showed that I dont have the specific antibodies and also the thyroid hormones are just fine.

Would you think that one could feel a stenosis in the IJV? Might this be what I experience? Do others who where diagnosed positive for CCSVI also report about such sensations of pressure and tightness?

Thanks!
--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

I have been talking to my neuros (in Raleigh and Charlotte) about tightness in my neck to my shoulder on the left side and it is worse some days than others. I can feel it about 90% of the time, and when I cant feel it, my day is perfect (no fog, no ON symptoms, nothing).

I think you can feel it. I am sure not everyone can feel it, but some folks surely can tell there is something wrong.

Hi,

I have exactly the same. Sometimes it feels that someone has put their hand round my throat and squeezing my throat.


Caraboo

@caraboo: Did you already have a CCSVI examination? Did they find issues with your veins?

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

Hi Frank,

No I have not been tested, I go this month and hopefully I am.
What about yourself?

Caraboo

Yes, i continuously feel like I am being strangled.

Thanks for your feedback. Currently I'm carefully watching the CCSVI development. As I live near Frankfurt, I could possibly try to see Dr. Vogel, but I guess that the waiting list would be really long and I'm also not really sure whether Dr. Vogel would be propperly trained and equiped to give me a definite CCSVI diagnosis.

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

Hi Frank,


I had a appt with Dr Vogl. I cancelled it as he does the testing but stopped doing the procedure. I think he is good at testing, A few people from tims have been to him and been diag ccsvi. I just did not want to go all that way and only be tested.



Caraboo

Hi,

neck tensions are apparently very common. See earlier post:
http://www.thisisms.com/ftopic-9657-0-d ... rasc-.html

I got relase from my severe neck pains and tensions when I was liberated in Poland on the 15th of April, pretty much disappeared on the operating table. Always left side so no surprise when that side needed ballooning and a stent.

Does Dr. Vogel still do doppler AND MRV?
Why did the stop doing the liberation procedure? Is anything known whether they are going to restart it, maybe even taking part in a trial?

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

Yes, I have the sensation of blood doing something strange in my neck. I can feel it pounding almost to the point of feeling choked or someone wrapping their fingers around my neck. Seems so strange, like the blood is not flowing properly. Headed for doppler testing next month. Lets hope for the worst which is really the best!!
Gina

Does anyone else have a feeling of pressure at the back of the neck? I have pressure and the feeling of lightheadedness in that kind of ridge part at the base of the head/top of neck. I haven't had it since being liberated although it came back recently during relapse of vertigo.

Hi Frank,


I think it was the hospital that stopped him. He is still doing doppler and the other tests. What he states is that you have to have insurance so that if anything goes wrong, you are covered. Dont know when he is restarting.


Take care
Caraboo[/b]

Wow, amazing to read. Obviously not at all "scientific" but I have had the feeling of being strangled for so long. I even joke that I must have been strangled in a previous reincarnation. I have thought of it as the MS hug around my neck and throat. It drives me nuts. This would be a great thing to remove from my life!