This Is MS Multiple Sclerosis Community: Knowledge & Support

LR1234-
Please let us know how your return visit to the chiro works out--as you know from my posts, Chiro work on my atlas has been a miracle--definitley MS from neck trauma from years ago--and ignored by MS specialist as of no connection with the MS.

Zap -

I am close to Boulder so I will give Dr. Elster a call. Even though I have been treated by Dr. Dake, I would like to connect with her. I will get her and my chiropractor together - he treats about 50 MS patients - he has had conversations with Dake and I keep him uptodate on all the research.

Sharon

Hi Shye,
I went back to Chiro but we decided not to click any part of my neck but just to ease the muscles up. I think if I didn't have such a serious vertigo attack after the treatment I would be more inclined to have him take another look at it.

Shye-congratulations on your improvement! I went to an upper cervical chiropractor a couple of years ago, but I am not sure she was the best chiropractor in the world... I also went to this chiropractor years ago, but I suspect that because I had a bridge in my mouth that covered the midline, that the technique did more harm than good... I no longer have the bridge (the midline is indicated by the dip in your upper lip below the nose and when you put a rigid bridge in the mouth that crosses the midline it freezes your entire skull in place). My holistic dentist showed me how this works, your skull is made of various plates, and when you cross the midline he showed me how these plates could no longer move). Maybe I should pursue treatment again, because I have a class III maloccusional and I've always suspected that it affects my neck/spine...

http://www.advbiostructuralcorr.com/disease/ms/ms01.htm

My upper jugulars were mashed against the little process bones that stick out of the sides of the C1 vertebrae, called an "osseous occlusion". I don't think the years of chiropractic adjustments could fix it, although I'd always see things brighter and walk a little better afterwards. There just wasn't enough room in my scrawny neck!

Here's the images from the MRV, after and before.

http://healingpowernow.com/stenosis_images.htm

_________________
RRMS '96 SPMS '02 | Dual jugular vein stenosis (CCSVI) | 10/09 3 stents, 1 angioplasty. Details http://healingpowernow.com

LR1234:

I have been seeing a chiropractor since I heard about CCSVI, and my neck showed trauma. My thinking was perhaps the trauma caused the flow problems and so an adjustment would help improve flow.

The issue is this: Since I have been having adjustments, my vertigo has gotten worse, as has the heavy feeling in my feet. Plus, now, when I stand up, it feels like all of the blood is rushing to my feet and I feel light-headed. I mentioned it to the chiro, he said it's normal to have blood rush to your feet when you stand up quickly, but it's bizzare and makes me feel like I am about to fall over. Maybe thats normal?

Given CCSVI, why do you think adjustments would cause this or do you think it's related at all? I am just curious to get your thoughts, since I find it odd that 'getting right' would cause perceived problems, but there they are.

-Cathy

P.S. Adjustments always make my neck feel warm, which leads me to believe something is flowing that wasn't flowing before, but did I inadvertently make reflux worse or something? That would really STINK!

I have been a patient of Dr. Elster for several years and I have to give her the full credit for allowing me to function over that time. When I tried to tell my neuros about the immediate symptom relief from upper cervical treatment they assured me that was impossible. Maybe some coincidence or placebo effect, but certainly aligning the atlas-axis could not impact an autoimmune disease.

Now that I have learned about CCSVI it all makes sense. The vertebrae COULD impinge on the vein(s) which COULD cause CCSVI, which COULD cause MS.

I have to say that my current neuro is open to new thinking and is very interested in CCSVI. I would give him a plug here, but I have not obtained his permission to use his name. I would, however, encourage anyone who is interested to check out Dr. Elster. She has patients flying in from distant states for treatment, and I would do the same if I was not so fortunate as to live nearby.


http://www.erinelster.com

Notadoc - check your PM's

Sharon

@Cathy
I went to a physio who specialises in vertigo.
He did a test on me which suggests that I have BPPV.
I had rotary nystagmus associated with my right ear.
I also have nystagmus from my MS but this is very different from the rotary nystagmus.
He did the Epley manuever on me today so I hope this will help my vertigo.
He can't say for sure that the MS has not complicated the diagnosis as some issues can be from the MS but I def have BPPV. (Bppv usually only lasts a few minutes at a time and not for 6 weeks constantly like this so we will see)

I had posted my experience under Eagle Syndrome causing CCSVI. Kindly see if this is not your case. Your radiologist will be the best to tell u as in my case.

I think your problems are related to Dr. Noda CTOS/CTNVS.
you can read about it here:http://www.thisisms.com/ftopict-10649.html[url]
This is my last post:[/url]

I recently found an old Cervical MRI report that I found interesting (possibly CTOS/CTNVS/CCSVI related). Dated: Jan. 6th 2003 - "The focal area of increased signal noted within the cervical cord posterior to the C3/4 level is again noted and has not changed significantly when compared to prior exam of 8-7-2002. No significant cord enlargement or enhancment occurs at this level. As noted on the previous examination, a small focal posterial protrusion of C4/5 inverteratebral disc occurs just to the left of midline and has not changed significantly since the prior study. A more prominent right posterior osteophyte and disc protrusion is noted at the C5/6 level which appears to impress on the right anterior aspect of the cervical cord. This is also similar to the prior exam. There is generalized congenital spinal canal narrowing from C3 to the top of C7 also similar to the previous study. No significant abnormal areas of gadolinium enhancement noted. No suspicious signal changes in the imaged bony structures."

Greg Buchanan (not a Dr.) was talking about all this in his newsletter back in March 2004 http://www.upcspine.com/news_vol2_0304.htm


What amazes me is that not "ONE" neuro. (I've had a few) has ever brought up any possible alternative treatments - just DRUGS and followup appts. with them $$$.


"MR VENOGRAM FINDINGS 5-24-2010: The superior sagittal sinus with appears to drain predomininatly on the right. The transverse sinuses are relavetly symmetric in size. The sigmoid sinuses and jugular bulbs are relatively symmetric in size. At the base of the brain, the internal jugular veins are well visualized. At the level of the cranical/cervical junction junction on the right, the internal jugular on the right takes on a flattened morphology with respect to flow charactists. This segment is small in size being less than 10mm. Throughout the neck, the internal jugular veins have an ellipsoid morphology. The junction of the internal jugular veins with the subclavian veins is normal in apperance. There is slight asymmetry of the internal juglar veins with the right being larger than the left."

The more we learn, the more questions we have...