wake up call from a Ir in Denver

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

wake up call from a Ir in Denver

Postby lumpc1 » Fri May 07, 2010 10:08 am

the response i got from a Dr in Denver 'is it is BS', he says he works with the pressures and the stenosis is normal. he is getting his info from neuros and the fact that he has been dealing with this as part of headaches. I almost got in an argue with him cause I could tell he was giving me half truths. he said Zamboni is the one pushing this, i asked if he had seen the results of the [people that had the intervention, he of course said no. what shitty wake up call. just like so many others they are so sure they are right they don't want to see the truth or check it out. the rest of the world is a bunch of morons I guess. what a police state we live in from the media who is owned by the pharma and the defense contractors. thats all folks! anyone else get the feeling that some of these Dr.'s have no mind for the logical?
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Postby Cece » Fri May 07, 2010 10:34 am

we are putting ourselves out there with this...for every complete slapdown, or maybe every ten slapdowns, or maybe more, there are doctors who are receptive and who are doing the initial research so we will know...that doctor didn't know but acted like he did...it is lousy that you had such a rotten wake-up call
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby lumpc1 » Fri May 07, 2010 11:35 am

then he said he may be proved wrong.? if he were so sure he would not have said that, then he told me I could find someone to do it. what a double talkin..... so & so
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Postby ozarkcanoer » Fri May 07, 2010 12:51 pm

Just a comment on heacaches : I have a good friend whose father is a professor emeritus of neurology and spent his life studying headaches. He is now 88 years old and still does rounds. He says after all the years medicine has been studying headache THEY KNOW NOTHING ABOUT HEADACHE !!!!! What an honest thing for a professor emeritus to say !!! One of my main symptoms is killer headaches. Wouldn't it be wonderful if headache is also shown to be a venous or arterial problem and NOT neurological too !!!! I sure would be happy not to be rolling on the floor crying with pain from my headaches while my neuro throws drugs at me !!!

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Postby LR1234 » Fri May 07, 2010 1:13 pm

I may be wrong but I think migraines are due to blood vessels constricting or something???
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Postby chrishasms » Fri May 07, 2010 1:42 pm

Musta been at Anschutz
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Postby Nunzio » Sun May 09, 2010 12:25 am

LR,
that was the old theory; now we think there is a decrease in serotonine that triggers the trigeminal system to release neuropeptide which cause pain in the meninges.
But wait a second; MS was thought to be vascular few years ago. Anyway I hope improving blood flow to the brain will help those of you that suffer from migraines.
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Postby coach » Tue May 11, 2010 7:48 am

It did in my case. I described my headaches as a one-sided naggy thing that would hang around for three days,and OTC meds usually did not provide relief. I described it as a water-logged feeling of the head. Imitrex did help, but when the headaches became more frequent, I was limited as to the number I could take. Wonder if that has anything to do with the impaired drainage due to a problem with the veins that drain the brain. Just two headaches since the stents. Before stents, headaches had become a weekly occurence.
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Postby magoo » Tue May 11, 2010 11:11 am

My headaches/migraines disappeared shortly after my treatment. Mine were daily and kept me in bed a lot.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby ozarkcanoer » Tue May 11, 2010 11:17 am

Hi, Good talk about headaches. I have killer headaches. Plus a lot of neck pain and burning mouth and face. Right now I am feeling pretty good, but when I am bad I am horrid. I can't plan any activities because I don't know when they will hit. My hope for CCSVI is to be tested at BNAC and hopefully be treated in my home town if CCSVI is found. I am looking forward to being headache and fatigue free !!!

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