This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue May 21, 2013 9:07 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
PostPosted: Fri May 07, 2010 10:31 am 
Offline
Getting to Know You...
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 22
Location: Niagara Area, Ontario, Canada
Advances in treating diseases come only through clinical trials. Using cancer as an example, while only one percent of patients may be enrolled in a study, the remaining 99 per cent are not denied treatment. Why is MS being treated differently by our celebrated medical system?

This is a matter of utmost urgency. Many MS patients are experiencing a rapid decline in their health. We believe there is a moral obligation to offer all MS patients the imaging necessary to identify a venous malformation and access to the treatment that could possibly stop the progression of their disease in its tracks

Full letter link
http://www.liberal.ca/en/newsroom/media ... a-aglukkaq


Top
 Profile  
 
 Post subject:
PostPosted: Sat May 08, 2010 9:05 am 
Offline
Family Member

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 41
Location: New Brunswick, Canada
This is a start hopefully all the political parties will get on board.


Glenn


Top
 Profile  
 
 Post subject:
PostPosted: Sat May 08, 2010 9:51 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
Here is a terrific article from the Globe and Mail explaining why these two particular MPs are so interested in CCSVI research...they are doctors, know people with MS, and understand the connection of impaired venous function and neurovascular disease-- Canadian MS patients are fortunate to have these advocates.

link to article
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject: Reply to a comment
PostPosted: Sat May 08, 2010 11:02 am 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 398
Location: Fredericton, Canada
There are lots of comments in response to the Globe and Mail article. Some were simply political garbage, but others were at least on topic. I replied to a comment from someone who works in health care imaging who said that testing MSers would be too expensive:
Quote:
Dwight Winger, do the math: I would guess that, on average, each MS patient costs the health care system (Medicare or Insurance or patient-paid) $30,000 to $50,000 per year, and that doesn't take into account the economic losses related to MSers being unable to work, much less the tremendous toll on their quality of life. This is an investment with a potentially huge return in reduced cost to the health care system.

While I recognize that we can't diagnose 70,000 people in a short period of time (because of equipment, because of lack of expertise in diagnosing CCSVI), saying that we should therefore not do anything about getting geared up to do it makes no sense at all.

I went to Poland to be diagnosed and "liberated". It would have been nice if I could have at least been diagnosed before I went, but I understand that these things take time. What I would not understand (or accept) is that fellow MSers would still have no Canadian options five years from now. That wouldn't just be stupid, it would be inhumane.

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Liberals Call for Clinical trials

Doodles

2

728

Mon Jul 04, 2011 2:52 am

EuroMedic View the latest post

There are no new unread posts for this topic. Liberals successful in bringing MS debate into House of Comm

[ Go to pageGo to page: 1, 2 ]

erinc14

17

2654

Wed Jun 16, 2010 6:12 am

erinc14 View the latest post

There are no new unread posts for this topic. Advice on Getting GP Support?

bibliotekaren

9

1336

Tue Jul 21, 2009 5:17 pm

peekaboo View the latest post

There are no new unread posts for this topic. What to do to support healing?

Tim78

1

883

Sat Nov 14, 2009 6:32 am

GiCi View the latest post

There are no new unread posts for this topic. U.K. support looks terrible

tazbo

6

1376

Fri Feb 12, 2010 11:27 am

squiffy2 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: