sunlounger 2nd procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby costumenastional » Sat May 22, 2010 2:26 am

AMcG wrote:Three months does seem to me to be a sensible time to wait before you try to assess what changes have happened.


Yeah. and also make sure your veins remain open until then. A doppler 2-3 months post op sounds like a good idea.
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Postby sunlounger » Sat May 22, 2010 2:34 am

vivavie wrote:
I was liberated almost 4 weeks ago and instead of getting better I am slowly degrading... I also have new symptoms, some started the day after the procedure; numbness in my left arm (stent in left jug) but the worst is my Jello brain;( I am not dizzy. It is more like if my brain moves and hits my skull) Very strange feeling. I have to stay in bed for days.

At first I thought it was the bloodthinners because it cleared up 3 days after I finnished the Clexane injections but now it came back and it's been FOUR days!!!


Hi vivavie,

Sorry to hear this, because of the new symptoms and you say they couldn’t get into the azygos vein are you planning to return to have this all checked ?

Like its been said got to give 3 month’s but understand these new symptoms are a real worry please lets us know how thing work out


Miia wrote:I got scared because I was walking fine on Wed and the next day I was again a drunken sailor and needed a cane. Yes, it's best to be patient and not think about it too much.


Hi Miia,

Was nice to meet you wish we would have had more time to talk :D

I hope this possible relapse clears up soon , have you re-stenosis well I think most people who felt they had experienced improvements early on which then went had a good idea they had re-stenosis, but it’s impossible to say unless you get tested, are you due to return in 3 months for check up ?
You might find that you’re not lost
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Postby Miia » Sat May 22, 2010 8:31 am

Thank you all. I try to get healthy of this infection,after that I can say more. I still haven't any problems in cognitive functions. That's a good sign I think. Pre op I had a bad brain fog and fatique.

I'm definitely going back for check up. In 3-6 months I think. If my condition is getting worse, I go sooner, if better I go back a bit later.
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