Where in Europe have available CCSVI testing&treatment?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Where in Europe have available CCSVI testing&treatment?

Postby adamt » Sun May 09, 2010 3:27 am

I know Poland has lots of clinics doing the testing/treatment but they all seem to be fully booked till at least September this year

i was wondering if anyone knows of clinics/hospitals anywhere in Europe that will be offering CCSVI testing/treatment within the next few months?

thanks
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Postby Robnl » Sun May 09, 2010 3:39 am

look at ccsviinfo.nl

Robert
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Postby adamt » Sun May 09, 2010 3:51 am

Robnl wrote:look at ccsviinfo.nl

Robert


i tried but it wasnt a working page?
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Postby coin » Mon May 10, 2010 2:25 am

check that page, gives a good overview:-))
http://liberation-treatment.com/liberat ... nt/doctors
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Postby Robnl » Mon May 10, 2010 3:05 am

http://www.prescan.nl/nl/onder zoek...handelingCCSVI

www.ccsviinfo.nl

Dutch companies, hospitals in Germany.

Robert
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Postby Asher » Mon May 10, 2010 4:20 am

Robnl wrote:http://www.prescan.nl/nl/onder zoek...handelingCCSVI

www.ccsviinfo.nl

Dutch companies, hospitals in Germany.

Robert


Thank you Robnl, I have called Prescan. They insist that you bring your neuro records to the scan and they refuse to test without the records. As I do not want to involve my narrow minded neuro, I refused. They got irritated and forgot for a while who's on the paying and who's the receiving end of the deal.

CCSVI may have a favorable effect on the outcome of MS but is a venous condition, not a neurological one. CCSVI should be treated regardless of MS. I thanked them and decided to further peruse the Polish option. They just do the job, and pretty dammed well judging by the reports.
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MRI venogram and treatment in Germany

Postby condes » Tue May 11, 2010 10:50 am

For those who are living in Europe this is my recent experience:

- Dr Vogl from

Goethe university of Frankfurt (Germany)
mailto:t.vogl@em.uni-frankfurt.de
Phone: +49(069) 6301-727

is performing MRI Veinogram and angioplasty treatment if applied, all at your own risk.
I had the MRI Veinogram done last week (1200 Euros). Everything very professional.
Dr Vogl gave me then the diagnostic. I'm not a brilliant candidate for the treatment as my left jugular vein is not blocked but only narrow all the way down + my MS is quite old and probably I will not recuperate very much.

Anyway I have decided with my family to go on with the treatment (4000 Euros) as it is the only hope of any improvement even if it is a minor one.
Dr Vogl gave me an appointment in June 2010. (by email only)

I would like to report also how amazing was the atmosphere in the waiting room with all the patients coming from all Europe asking each others and commenting, laughing and crying depending of screening results.

Hope everyone will experiment the same ASAP.
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Postby Deena » Wed Jul 07, 2010 10:01 pm

Dr. Vogl seems like a great guy but three things to note:
1. I heard he doesn't scan the azygos vein
2. He doesn't use local anesthesia (my own personal feeling is now there's no way I'll go to him!!! I need anaesthesia, sedatives, the whole works.)
3. He does not put in stents. That is his policy.
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adresses

Postby joge » Thu Jul 08, 2010 9:53 am

http://www.ccsvi.nl/Centra/

use Google Translate Button, choose English...

Here you can find adresses.
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