shit... how come everybody feels better xcept me...
Hey Costume National, kind of missed your procedure - it happened very suddenly, I think. I am very sorry that you are not feeling better. Is it perhaps due to your EDSS? I read repeatedly that Simka admonishes people to give it three months, so hopefully, something will switch for you soon. We are still here, and still with you. I know that doesn't make you feel any better physically though.
Hang in there.
Thanks friend, i know... and i am still here, with you.
My edss is 2. Well, actually in Greece i was 0,5 due to my left eye optic neuritis but in Sofia they told me i am a 2 cause i have scotoma in that eye, whatever that is. Then again, is there really a neuro to tell me how i feel?
I can function very good actually. But appart from numbness in my hands, tinitus and eye problems my most severe issue is my cog fog, dizzyness, lack of energy and lack of alertness feeling you know? My balance is not perfect either. Anyway, there is no change in there. And it is frustrating cause i could use a bit more energy.
To be honest my left eyelead does not drop anymore like it used to 3 weeks pre op and my wrists feel normal. I had this weak wrists feeling pre op which made me think i am loosing my hands. I think it s gone.
Can i say that these are happening because of the procedure? Who knows? I really need for something more drastic to take place to tell you all that it is working for me.
There is no doubt in my mind that CCSVI causes Multiple Sclerosis. I ve seen too much not to believe so.
The problem in my case might be that it took me 7 years of vein malfunction working slowly and silently to get me where i am. Maybe it ll take more that a week for my poisoned brain to come around. I ll try to make sure that my veins remain open, i ll stay away of bullshit drugs and i ll be around to tell you how it goes.