AMEDS Poland?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Liber8 » Mon May 17, 2010 6:46 am

I know, it would be great if Simka and his team had helped AMEDS with training etc. I have not yet heard if AMEDS has had their training and where.
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Postby Rialynn » Mon May 17, 2010 8:24 pm

I got an email update that Stated that I am registered and that they are working through the list assigning dates. OMG I have butterflies thinking about it. My procedure should come up on Euromedics list in Dec 2011. What do I do if Ameds gives me an earlier date.
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Postby SandyK » Mon May 17, 2010 8:55 pm

You go!! :wink:
Diagnosed 1994, Self EDSS is 6.5
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Postby Rialynn » Mon May 17, 2010 9:20 pm

If there is anyone who gets a date post here and when you had first contact was then we might have a reference to go by. I think the hardest is not quite knowing when or if we were forgotten somewhere.
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Postby Liber8 » Tue May 18, 2010 4:24 am

Rialynn wrote:If there is anyone who gets a date post here and when you had first contact was then we might have a reference to go by. I think the hardest is not quite knowing when or if we were forgotten somewhere.


Don't worry about it. My first contact with them was late February and even though I have gotten all the emails along the way I have not been contacted for scheduling. I will try and post when they get a hold of me.
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Postby Rialynn » Thu May 20, 2010 9:28 am

thank you Liber8

I hope they call or contact soon I just sent in the passport application.
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Postby Liber8 » Thu May 20, 2010 7:01 pm

Rialynn wrote:thank you Liber8

I hope they call or contact soon I just sent in the passport application.


I emailed AMEDS to inquire about treatment dates. I got home and they had emailed me

Dear Sir

At the present time we set up dates for June and July for our patients registered In January and February .Your February registration gives us clearly preliminary date for

July –August .We will confirm precise date by email and phone. You may always contact us

Directly for details . We are doing our best to shorten waiting time for our patients.


With regards

Jarosław Troch

President

Sounds nice, but they have delayed alot up untill now. Hope they hit their target this time.
RR DX 1993
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Postby Johnson » Thu May 20, 2010 10:18 pm

I got on the AMEDS list on March 10, 2010, and have been getting "the e-mails". I am on a few lists, but will be canceling the day after my procedure in Katowice in a couple of weeks, so there will be a few spots opened up. Be sure to have your passports ready!

Best of luck to us all.
My name is not really Johnson. MSed up since 1993
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Postby silverbirch » Fri May 21, 2010 3:35 am

Liber8 wrote:
Rialynn wrote:thank you Liber8

I hope they call or contact soon I just sent in the passport application.


Can some one explain Passport Application and when the need to send one in

Silver
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ameds poland

Postby miranda » Fri May 21, 2010 3:57 am

I called Marcin Duszynski and he told me that since we registered on

February 2nd the waiting period is maximum 3 months. As far as the

training regarding ccsvi testing , the doctors were trained in Italy by the

company that manufactures their medical testing equipment.


miranda :)
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Re: ameds poland

Postby Liber8 » Fri May 21, 2010 6:28 am

miranda wrote:I called Marcin Duszynski and he told me that since we registered on

February 2nd the waiting period is maximum 3 months. As far as the

training regarding ccsvi testing , the doctors were trained in Italy by the

company that manufactures their medical testing equipment.


miranda :)


Good to know about the training. I do wish they would just pay EUROMEDIC to train them if possible.
RR DX 1993
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Postby Rialynn » Sat May 22, 2010 10:07 am

silverbirch wrote:
Liber8 wrote:
Rialynn wrote:thank you Liber8

I hope they call or contact soon I just sent in the passport application.


Can some one explain Passport Application and when the need to send one in

Silver


I was talking about my Canadian Passport it takes 2 weeks here to get it. I will get it on June 4 so I am good for international travel after that. I am not sure if that is what you meant.

There is a Canadian company who are selling Medical travel called Passport Medical and I removed myself form their waiting list too expensive for me. I like that I can contact these people myself and speak to others who have had the procedure.
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Postby Johnson » Sat May 22, 2010 5:02 pm

I was talking about my Canadian Passport it takes 2 weeks here to get it.

Yes, 12 business days. However, if you have a medical necessity, and a plane ticket, you can get it in 48-72 hours. (costs extra, though)
My name is not really Johnson. MSed up since 1993
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Postby Villagemaid » Wed May 26, 2010 8:38 am

I have talked to Marcin as well. Looks like they are starting to at least give people approximate month that they could have the procedure.

I think mine is July or August.

Hopefully we can make a list of people going and the date so we could maybe hook up at a hotel at the same time.
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Postby Rialynn » Wed May 26, 2010 6:21 pm

Villagemaid wrote:I have talked to Marcin as well. Looks like they are starting to at least give people approximate month that they could have the procedure.

I think mine is July or August.

Hopefully we can make a list of people going and the date so we could maybe hook up at a hotel at the same time.


That would be great, Villagemaid, When was you first contact with Ameds? Mine was April 10.

That is great news Did you get the approximate month from Marcin or did they give you an email?
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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