AMEDS Poland?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Villagemaid » Wed May 26, 2010 8:02 pm

I think I am going to stick with Bulgaria.
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Postby IbRiz » Fri May 28, 2010 1:57 am

Today I got my preliminary appointment with Ameds. July 12th!

Anyone else receiving appointments from Ameds?

christian
RRMS Dx'd 2009
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Postby Ali888 » Fri May 28, 2010 4:26 am

IbRiz,

When did you first contact Ameds?

Thanks for the info!
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Postby IbRiz » Fri May 28, 2010 4:31 am

@Ali888:

I think around january 20th.

christian
RRMS Dx'd 2009
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Postby Farmer » Fri May 28, 2010 12:20 pm

Ameds 8th July registered 21 Jan
I am from BC Canada
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Postby ssmme » Fri May 28, 2010 1:44 pm

I filled out the registration form in late April and received an e-mail mid-May. The e-mail said I would be contacted soon. Soon is never soon enough. Congratulations for getting a date set. Tell us about the procedure and the facility/doctors you get to see - well on second thought tell us everything!!

Marcia
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Postby Rialynn » Fri May 28, 2010 2:18 pm

thank you for leting us know that things are moving it is just a waiting game. start progress threads and we will follow you. Congradulations both of you.
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Postby Bear2 » Fri May 28, 2010 2:49 pm

I was offered July 28th. I had sent first email on Feb 21st.

I asked them to change it to Sept.

Jim
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Ameds

Postby silverbirch » Fri May 28, 2010 3:09 pm

Bear2 wrote:I was offered July 28th. I had sent first email on Feb 21st.

I asked them to change it to Sept.

Jim


Jim apoligies in advance for questions

Did they converse via phone or email ?

Did they accomadate you on your dates in sept ?

Did they ask for a deposit ?

Regards
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Postby Bear2 » Fri May 28, 2010 3:21 pm

Everything was by email

Their email had July 28th for date. I asked for later date in Sept but no reply. It has only been 4 hours since I sent the reply.

No $$ were ever asked for or sent.

Jim
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Ameds

Postby firehazard » Sat May 29, 2010 4:34 am

Just got a mail from AMEDS offering 17th of August...Alittle surprised as I first contacted them on 23rd Jan...I was expecting sooner , I spoke to Marcin and was told that I would be one of the first.
This kind of makes my decision for me , I already have an appointment in Glasgow on 18th August..assuming they can offer liberation and not just the scans... I do not want to be put on another waiting list for another 6 months !
Anyone else off to Glasgow ?? :?
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Re: EHC

Postby silverbirch » Sat May 29, 2010 6:02 am

firehazard wrote:Just got a mail from AMEDS offering 17th of August...Alittle surprised as I first contacted them on 23rd Jan...I was expecting sooner , I spoke to Marcin and was told that I would be one of the first.
This kind of makes my decision for me , I already have an appointment in Glasgow on 18th August..assuming they can offer liberation and not just the scans... I do not want to be put on another waiting list for another 6 months !
Anyone else off to Glasgow ?? :?


EHClinic repy to me when I asked my screening is July I dont expect my treatment to follow 3/5 days thats me reading between the lines. Clear lines between EHC & paitent is not so straight forward at this time...

EHC - Their Procedures will NOT be offering stents untill research is completed.

Unfortunately our partner clinic in Edinburgh will not be able to start the procedure until august. this will create an initial back log of patients needing the procedure but we hope to clear this as soon as possible.

Im sure in time !! EHC will offer both screening/treatment back to back once their up & running.

Silverbirch
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AMEDS Confirmation Email

Postby seanthecaper » Sun May 30, 2010 3:26 pm

I registered in January with AMEDS. I received a tentative date of July 9. The patient coordinator, Jaroslaw Troch, told me to not book any flight as this date is preliminary and subject to change.

Has anyone gone there yet and what was their experience?

I am assuming that they have their license now so that's why they are contacting patients with preliminary dates.

Sean McNeil
Sydney, Nova Scotia, Canada
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Stents

Postby seanthecaper » Sun May 30, 2010 3:28 pm

Is anyone aware of AMEDS offering stents if angioplasty fails?

Sean
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Postby Rialynn » Sun May 30, 2010 4:21 pm

I am sure that they are offering stents their pricing reflects there is a diffence in price between plasty and if stents are required.
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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