AMEDS Poland?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Ciara » Mon Jun 14, 2010 1:26 am

Good luck Louise3! :wink:
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Waiting to hear from the first and second group form AMEDS

Postby Rialynn » Mon Jun 14, 2010 2:51 am

It is almost like the rest of us are waiting in anticipation to hear the great news from group one on their sucess stories and progress after the liberation. It is very exciting. The whole journey is amazing.The sky is bluer and the roses sweeter knowing that there is hope.


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:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D

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Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Postby JOJOB » Tue Jun 15, 2010 6:08 am

All the best lOUISE3, :D
Thinking of you !!

I can't wait to know how it went... :D
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Postby Rialynn » Tue Jun 15, 2010 6:52 am

Reports are coming from the 1st and second group to be liberated, on AMEDS CENTRUM facebook page
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Positive Liberations at AMEDS

Postby Rialynn » Thu Jun 17, 2010 5:18 am

I am so excited to hear more of those who have gone to AMEDS. I can't wait hear more of everyones sucesses and find others who are travelling to Warsaw.

Congradulations to Louise I am happy that things when well
Last edited by Rialynn on Thu Jun 17, 2010 2:02 pm, edited 2 times in total.
Here's to Warm Feet and Rediscovered Sensations :RRMS diagnsed 1998, I am 38.From Barrie Ontario Canada.
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Less than 24 hours after procedure:)

Postby Louise3 » Thu Jun 17, 2010 8:46 am

Just a quick not to say Ameds is very good I am so impressed. They went out of their way to find my problem which was slow blood flow in my right juglar vein. When found where the narrowing was I had a balloon stent to correct the flow. I have no pain and some senentations around my boby warm hands and feet!

Its only been 20 hours so I will report more soon.

Everyone with MS should get the test and treatment!
Here is to CCSVI NOW!

Louise
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Postby Ernst » Thu Jun 17, 2010 11:50 am

Absolutely good to hear Louise3, next week I'll see the action in Ameds when my wife and a man from my city are treated there. That'll bee very interesting, Im sure about that. Im happy for your improvements :D
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby Ciara » Thu Jun 17, 2010 11:41 pm

These are great news Louise3, whish You all the best!
Ernst please keep us informed about your wife and your friend!
Thanks everyone :)
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Postby daniel » Fri Sep 10, 2010 6:48 am

Just got this email from Ameds

Hello,
We would like to inform you that AMEDS Centrum has started to assign
dates until the end of this year and first months of 2011. Please let us
know if your are still
interested in signing up for a visit with AMEDS, so we can assign you a
date.Please let us also know if you are cancelling your registration, and
the reason for cancelling, so we may assign your place to someone else.Be so
kind and reply within the next 3 days.
I am sending also the questionnaire, If you are interested in visit, please
fill it out and send back.
If you have received an e-mail from Ameds coordinator, please disregard this
communication.

Best regards,



Are there any more stories (good or bad) of people that've gone to Ameds?
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Hello

Postby Louise3 » Wed Oct 27, 2010 4:23 am

Hi i so sorry i did not post my sucessful visit to Ameds 16th June. I have been so busy spreading the good news.

Anyway i visit Ameds 16th June and had an angioplasty done in my right Jugular vein.

Since this procedure i do not take any nerve pain killers or my DMD beta Interferon I am no longer in pain, or confused and my strenght has improved and is still nearly 4 months on.

I am still using my wheelchair some of the time but I can now walk with a frame a bit which I never thought i would ever do.

I am due back at Ameds for a Check up 21st November will report back.

I would like to add that Ameds, Walsaw were so very good professional and really looked after me during my stay in Poland.

I will promise to check this site and will try to help anyone I can with any queries.

Louise
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Ameds

Postby dm656 » Wed Oct 27, 2010 4:51 am

I was treated at Ameds and can only give positive comments regarding my treatment there. They are very caring and professional organization and keep you fully informed throughout your visit.

With the increase in their quotas, the wait time is anticpated to be significantly reduced by the new year. They do offer follow up visits as well which is beneficial since Canada does not allow this.
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