Motiak wrote:I guess the best is to list some problems with that thinking:
1. What about patients that didn't have symptoms return after termination of therapy?
2. What about patients who have almost immediate return in symptoms due to a restenosis that have not stopped their therapy?
3. What about patients that still have warmth in their extremities long after iodine would have run its course in the blood stream?
I mean, it's easy to focus on certain cases and make claims like these but you have to look at the whole picture.
AMcG wrote:Hi Malden
If I thought this enquiry was serious I might take the time to reply like Motiak. Have you any citations to support any of this?
I don't care if CCSVI has anything to do with MS. Just like I don't care if a broken leg / UTI / bronchitis / you name it, has anything to do with MS.
If I find out my veins are blocked, I want them UNblocked, because I refuse to live with blocked veins.
If I break a leg - I want a cast and a mend of my bone. I will insist on getting it fixed even if it does not fix my MS.
And "so-called-stenosis" is not "so-called". It's a medical term and a medical condition.
AMcG wrote:In my own experience I experienced the warm feet about an hour and a half after I came out of the operating room. Which to me sounds like too late for it to have been the contrast media (it would have been injected 2.5 hours earlier). I still feel warm and there is definitely none in me now. I was not given the anti-coagulants until some hours after the warm feeling so I cannot see how that caused it either.
My own belief is that the warm feelings, temperatue control, sweating, sebaceous secretions, conjunctival secretions, alertness/fatigue control are all carried out in the hypothalamus. Which is right at the base of the brain, exactly where jets of reflux would hit. These are all autonomic functions. Removing the reflux basically turned my autonomic system back on.
The clear-headedness I think is the result of re-oxygenating the brain when normal blood flow resumed coupled with the temperature control afforded by the same flow. I love feeling the sun or wind on my face now. I was out yesterday and it started blowing cold wind. I fastened my jacket up and put my hands in my pockets but my head and face retained a pleasant temperature. It was enervating.
I think the idea that anti-coagulants might have a beneficial effect on CCSVI symptoms is probably correct as it would probably slightly improve flow past an obstruction. But I think my improvements are much greater than could be explained by that. Only time will tell. I can’t do anything strenuous at the moment so I cannot see what happens when I stress my system.
The restenosis thing is easy to explain. In Zamboni’s study the patients who restenosed didn’t know they had. They had a return of symptoms it was only after a second venography that it was found they had restenosed. They were ballooned again and the symptoms went away again
As soon as I can do some proper exercise (6 weeks?) I will post on the tracking thread.
Johnson wrote:...Putnam tried to treat MS with "blood thinners" in the 1930s, and had little success...
Malden wrote:Johnson wrote:...Putnam tried to treat MS with "blood thinners" in the 1930s, and had little success...
Some help on references on his work... I didn't find any.
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