so what is causing our abnormal venous system?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

so what is causing our abnormal venous system?

Postby sofia » Mon May 10, 2010 12:20 pm

well i assume i have malformed veines. (will soon find out, as i'm in tokuda hospital in bulgaria now)
can it for some be lack of vitamin d in uterous and childhood, can it be smoking for others, neck trauma for some, radon radiation for others, viral or bacterial causes, the next question is why have we got these malformations?!
can they be prevented, or is it inevetable for us with some gene fault to develop stenosed veines, if exposed.
me i'm born end of march, have suffered severe neck trauma, started smoking as a teenager, probably not had the best diet, come from a high radon radiation area, come from ms hot-spot area, 5 of us in a small village.
what is going on, can it be different causes, or a few of them all combined.
how to best protect our kids?
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
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Postby caraboo » Mon May 10, 2010 1:11 pm

Hi sofia,


So glad you made it. When do you get tested and procedure.


Take care
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Postby colapesce » Mon May 10, 2010 1:19 pm

just missed you. I left at about 1pm. Good luck - you're in great hands!
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Postby 1eye » Mon May 10, 2010 1:27 pm

I think this will possibly never be pinned down. It matters not to me, though. I have tried to caution my kids. There was above-ground nuke testing, leaded gas, you name it. The honey bees are in big trouble. There's a real big oil spill going on right now. Some of us may be coal-mine canaries. I don't think my species will ever learn, I really don't. Think local, act local. JMHO
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby ndwannabe » Mon May 10, 2010 1:32 pm

Who knows? Maybe it's just like the cord around the neck thing - that happens as we move in the womb?

Seriously, though - I remember seeing that certain gene is responsible (OK, theorized to be responsible) for vein malformation.

We (the humans) are not that advanced in our knowledge of genome yet. Hey, we just recently figured out it exists! :lol:
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Postby shye » Mon May 10, 2010 3:51 pm

seems to me it is a genetic susceptibility, probably then triggered by diet, stress, environmental toxins, and trauma--the diet part is very important I think--we could be allergic to certain foods, which would affect absorption etc, or we could be eating a diet poor in specific nutrients, etc.

It's been shown we can alleviate a lot of our symptoms with diet changes, lessening stress, and changing our environment.
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low prenatal sunlight exposure retards vein formation

Postby hwebb » Mon May 10, 2010 6:45 pm

I would put my money on low prenatal sunlight exposure:

http://www.medscape.com/viewarticle/721367
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Postby Billmeik » Mon May 10, 2010 7:14 pm

how about ms lesions? sending scar tissue down the veins.


an ms causes ccsvi idea.
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no - ccsvi comes before lesions

Postby hwebb » Mon May 10, 2010 9:46 pm

I think there's too many instances of people with clinical symptoms of MS, who have constricted veins (proven with Doppler Ultrasound), yet have no brain/spine lesions. There are several people in this situation participating in this forum.
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Postby mangio » Mon May 10, 2010 10:31 pm

1 May 2010

Vitamin D cuts preterm birth risks.

Expectant moms urged to boost daily dosages. All pregnant women should take 4,000 international units of vitamin D daily - 10 to 20 times
the dose the leaders of pregnancy specialists currently recommend -
to lower their risk of preterm labour, preterm birth and infections,
concludes the first study to investigate the safety of high doses of vitamin
D during pregnancy.

The study found that women in the 4,000-IU-day a group had half
the risk of premature delivery than women who took just 400 IU of
vitamin D daily.

Premature birth is the leading cause of newborn deaths in Canada.

We never imagined it would have as far-reaching effects as what we have
seen says lead researcher...presented at Pediatric Academic Societies
in Vancouver.

"The concern of giving too much vitamin D in the past was based on wrong
studies." says Gagnon, also director of maternal fetal medicine of obstetrics at McGill University and hospital.

For decades vitamin D was thought to be a teratogen - an agent that
caused birth defects - after reports from the U.K. emerged in the 1960s
of babies born with heart defects, m. disabilities and elf-like facial
features. The babies were found to have high levels of calcium, which
doctors attributed to too much v. D, since the vitamin helps the body
absorb calcium.

What they discovered years later was the children had Williams syndrome,
a rare disorder caused by deleted genes that affects how babies metabolize v. D, leading to higher levels.

494 women were studied at 12 to 16 weeks gestation into three
treatment groups one group received 400 IU of vitamin D3 a day
until delivery: another 2000, and the third 4,000.

The higher the dose, the more v. D was measured not just in the
mother but also in the baby at birth, showing the supplement
crosses the placenta to reach the child.

Canwest News Service
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good find

Postby hwebb » Mon May 10, 2010 11:12 pm

fascinating article on vitamin D supplementation in Canada. I forwarded it to Prof Ponsonby, who wrote the "prenatal vitamin D link to MS" article I posted earlier.
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Postby Billmeik » Tue May 11, 2010 6:08 am

ya probably its truncular so congenital but buffalo didn't find enough people with bad ccsvi and mild ms. Now Ive heard of a few. If you're born with it yor ms should be mild to start and ccsvi bad.
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Re: so what is causing our abnormal venous system?

Postby vesta » Sat Jul 14, 2012 9:55 am

A plausible hypothesis.
In Multiple Sclerosis blood vessels "deformed" by childhood
stress cannot accommodate the blood flow. The auto-immune response is secondary to the true cause of MS, a blood reflux which injures the brain and spinal cord. The origin of the reflux may be structural (CCSVI stenosis) as proposed by Professor Zamboni or it may be a "temporary" stress reaction to a toxic substance.

Let's re-think first causes. And then move on to real solutions.

Epidemiological studies on MS show that those who grow up close to the equator have less chance to develop MS than those living in latitudes closer to the poles. It is the latitude where one lives before age 15 that counts, not where one lives subsequently. It is therefore thought that the lack of sunlight – hence Vit D – is a factor in susceptibility to MS. Vit D is recommended for M.S. patients.

But perhaps a better explanation of the geographical factor is Winter Cold.

The shoulders and neck typically tense up under stress thus restricting circulation to and from the brain. Cold weather stiffens the muscles. Winters bring the body aches of colds and flus.

It is also said that MS patients tend to be high powered, ambitious people. Tensed up in other words. MS cases cluster in northern Europe and North Amerca. Let’s say growing up in a culturally demanding family environment (or in any case stressful) while subject to Cold weather and frequent colds and flus actually compresses and deforms the circulatory system in the child’s developing body. By the time he/she reaches age 15, the stunted blood vessels can no longer accommodate the blood flow. MS first appears in adolescents, seldom in children. Let’s compare the deformity to ancient Chinese footbinding where the tiny child’s foot cannot support the adult woman.

Food intolerances, especially to wheat and dairy products, can further compound the stress. The Neolithic agricultural revolution dates back not much more than 10,000 years, a blink of the eye in terms of biological evolution. Bowel problems are a sure sign of food “stress”.

And the disadvantage of being female (two-thirds of MS patients are women) is that one tends to internalize anger. Rather than beat someone up, women are as likely to beat themselves up. Of course, boys get bullied too. And perhaps monthly menstrual cramps in a growing girl actually "stunt" the circulatory system. Stress.

Maybe the real story behind MS is the damage to the blood vessels caused by growing up female in a 1) driven, ambitious or otherwise stressful family environment compounded by 2) a climate of Cold winters which contribute to 3) frequent viral illnesses compounded by 4) an intolerance to the wheat and lactose of a Neolithic diet.

For more ideas see my info only main site MS Cure Enigmas.net
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Re: so what is causing our abnormal venous system?

Postby David1949 » Sat Jul 14, 2012 12:33 pm

That's the 64 thousand dollar question. Wish I had the answer.

My guess is that MS is actually several diseases that have somewhat similar symptoms but different causes. All of them get lumped together into one pigeon hole labeled MS. So there won't be one cure because they have different causes. Some may be due to CCSVI. Some may be due to spinal column or brain trauma. Some may be due to viral or bacterial infection. A cure that helps some people won't help others. That may be one of the reasons why researchers haven't been able to pin down the cause.
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Re: so what is causing our abnormal venous system?

Postby tiltawhirl » Sat Jul 14, 2012 3:59 pm

David1949 wrote:That's the 64 thousand dollar question. Wish I had the answer.

My guess is that MS is actually several diseases that have somewhat similar symptoms but different causes. All of them get lumped together into one pigeon hole labeled MS. So there won't be one cure because they have different causes. Some may be due to CCSVI. Some may be due to spinal column or brain trauma. Some may be due to viral or bacterial infection. A cure that helps some people won't help others. That may be one of the reasons why researchers haven't been able to pin down the cause.

I think you hit the nail on the head David,I concur. It may also explain the differences in efficacy rates with all the various therapies.

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