E-mail sent by my hubby and I is below:
Dear Ms. Holke,
I am writing to you to ask that the Parliamentary Sub Committee on Neurological Health Care immediately address the issue of denial of access to treatment for patients suffering from Chronic Cerebral Spinal Venous Insufficiency, or CCSVI. Patients suffering from CCSVI are being denied treatment for no good reason, despite that it can be clearly diagnosed, treated by a simple, low risk and inexpensive procedure, and has shown clear benefits to those who have been treated. This is patently contrary to the charter of Health Canada and basic human rights.
My wife and father-in-law both have a diagnosis of MS, and there are no neurological treatments that provide them any benefit. They need treatment now, not in 2 years or 5 years. This disease progresses daily, and it is immoral to deny a treatment that can help them today.
Thunder Bay, Ontario