Dr. Mcdonald speech-Parliament Hearing

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

E-mail to Parliamentary Sub Committee

Postby jozee » Fri May 14, 2010 7:05 pm

E-mail sent by my hubby and I is below:

Dear Ms. Holke,

I am writing to you to ask that the Parliamentary Sub Committee on Neurological Health Care immediately address the issue of denial of access to treatment for patients suffering from Chronic Cerebral Spinal Venous Insufficiency, or CCSVI. Patients suffering from CCSVI are being denied treatment for no good reason, despite that it can be clearly diagnosed, treated by a simple, low risk and inexpensive procedure, and has shown clear benefits to those who have been treated. This is patently contrary to the charter of Health Canada and basic human rights.

My wife and father-in-law both have a diagnosis of MS, and there are no neurological treatments that provide them any benefit. They need treatment now, not in 2 years or 5 years. This disease progresses daily, and it is immoral to deny a treatment that can help them today.


David Z
Thunder Bay, Ontario
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Postby Brightspot » Sat May 15, 2010 12:02 am

You asked who the lady politician is.

Dr. Kirsty Duncan is my new hero. She is a federal Member of Parliament and opposition health critic (federal). She is also a member of the parliamentary sub committee on neurological health, which provides her with a platform to invite persons such as Dr. McDonald to testify about the issue. She is a doctor of medical geography and has been a researcher. It is pretty obvious that she has read the research regarding CCSVI and is committed to ensuring that screening and treatment are available to those Canadians at risk. She was responsible for allowing people with multiple sclerosis who were not vetted by the MS Society to speak out.

On May 3rd, she put forward a very detailed and knowledgeable question on an "order paper", which the government in power must provide a substantive answer to within 45 days, or the matter is referred to a committee. This will ensure that the matter is not dropped.

I believe she is our best hope for advancing the interests of people with multiple sclerosis in Canada.

Canadians can do their part by sending an email to the committee to let the the committee know that she is speaking for a large number of citizens. (like Jozee in the posting above).
Last edited by Brightspot on Sun May 16, 2010 12:46 pm, edited 1 time in total.
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Postby AMcG » Sat May 15, 2010 12:39 pm

Thanks for that Brightspot. Very useful information. I am in the UK but I think what is happening now in Canada will greatly influence what may happen in the US and UK. So this is great news. Dr Duncan may well turn out to be my hero too!
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