How to find Doctors in your State, in your City, Mail Letter

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

How to find Doctors in your State, in your City, Mail Letter

Postby bmk1234 » Tue May 11, 2010 8:30 pm

Here is a link to get a list of Interventional Radiologists by State.
http://www.ucomparehealthcare.com/drs/i ... iologists/

Here is a link to get a list of Vascular Surgeons by State.
http://www.ucomparehealthcare.com/drs/v ... _surgeons/

I'm sure these links are not all inclusive, but it is a good start.

I took the names for Minnesota and copied and pasted into an Avery label template. Printed the labels, stuck them on the envelope and mailed my letter. It will only take a few hours of your time to contact numerous Doctors in your state. I encourage all of you to do this. PM me if you need help.

Blaine
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Postby tzootsi » Wed May 12, 2010 7:24 am

bmk1234, this could be very helpful. However, when checking the list, I discovered that the IR we are using is not on it even though he is director of IR at a major medical center. Also Dr. Sclafani is not on this list. Therefore, in addition to doing the mailings, people might try the following, which worked for us:
Do a google of close by hospitals, then find the IRs and vascular surgeons on the hospital web site. They should have phone numbers. Call them, and briefly outline to the person on the phone what you are calling about, and ask to speak directly to the doctor. You might be pleasantly surprised to discover that they are interested and receptive.
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Postby coin » Wed May 12, 2010 7:55 am

Hi there, what I found was very helpful was the recommendation of our GP for an IR or in our case an Vascular Surgeon ….and apart from that I did search in "google" for vascular surgeon and IR in our area( Bavaria, Munich) ...but the only successful email was the one where I wrote in the reference: contact via Dr.TBD.
Obviously you need GP who is open mined)
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Postby bmk1234 » Wed May 12, 2010 7:57 am

tzootsi wrote:bmk1234, this could be very helpful. However, when checking the list, I discovered that the IR we are using is not on it even though he is director of IR at a major medical center. Also Dr. Sclafani is not on this list. Therefore, in addition to doing the mailings, people might try the following, which worked for us:
Do a google of close by hospitals, then find the IRs and vascular surgeons on the hospital web site. They should have phone numbers. Call them, and briefly outline to the person on the phone what you are calling about, and ask to speak directly to the doctor. You might be pleasantly surprised to discover that they are interested and receptive.


The links, as you point out, are a starting point. People need to verify the the well know institutions in their states are on the list. There are also other sites that list Dr's but the links I posted had the most listed that I could find. It was very time consuming trying to find addresses and names, etc until I found these links.

Bottom line is people need to make an effort to contact local Dr's and push them in the right direction.
Thanks for the comments.
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Postby bmk1234 » Wed May 12, 2010 4:13 pm

Some Dr's are very interested in CCSVI. Even Dr's who have never heard of it. I've been contacted by 3 Dr's in the last 2 days inquiring because of the letters I mailed.

Imagine that Dr's calling you!!!

Get busy folks, good things will come.
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Postby Nunzio » Thu May 13, 2010 11:42 am

I have a team in South Florida that can do CCSVI testing and treatment.
Just PM me

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Postby rssugg » Thu May 13, 2010 1:20 pm

i have created a list of over 400 vascular doctors in NC that I will send information out to this week. Now, if someone has a one pager describing CCSVI that they will share, I will be set. Please post your letter here!

Thanks!
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Postby rssugg » Thu May 13, 2010 1:31 pm

^^got your note - email sent. thanks!
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Postby naychergirl » Sat Jul 10, 2010 7:25 am

Hi Nunzio! I PM'd you.

Marie
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Postby BadCopy » Sat Jul 10, 2010 9:44 am

I sent out only about 10 letters a couple weeks ago. Last week a IR here in MN called me while I was at work. Becuse I am not as well versed as CHEER, CECE and others I let him know that I would see if S or S would talk with him. He is VERY interested in it and the last thing I wanted to do was say something stupid. So now that he has Dr S and Dr S emails(with their permission of course) I hope he still wants to move forward. And maybe he will go to the Symposium.

I targeted small towns. I thought it might be accepted more. And who knows,maybe after my August appt with S I can have aftercare here in MN.
Last edited by BadCopy on Wed Jul 14, 2010 9:29 pm, edited 1 time in total.
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Postby BadCopy » Sat Jul 10, 2010 6:45 pm

And even though I know bmk1234 has already sent letters to the MN IRs I think it will be good for them to get contacted more than once. Maybe the first letter from Blaine introduced them to CCSVI. The second letter told them it is not just one person pushing for IRs to look into it. Then maybe the third or fourth letter from different people will be the letter that gets them involved.

And remember, Blaine has already had his procedure. He is doing this for all of us waiting for treatment. Wouldn't it have been great if you could have gone to your local hospital and been treated soon after being diagnosed ? I am sending these letters so hopefully people won't have to go through 17 years of this like I have.
Last edited by BadCopy on Wed Jul 14, 2010 9:31 pm, edited 1 time in total.
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Postby Cece » Sat Jul 10, 2010 7:07 pm

BadCopy and bmk are both on my heroes list for bringing interest in this to MN. Who knows what will pan out.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby BadCopy » Sun Jul 11, 2010 8:14 pm

If you are from Minnesota and willing to write a letter about CCSVI and send it to a list of Doctors from MN please PM me.

Here is how it would go:

BMK1234 sent out letters a couple months ago, now I am sending out a different letter to that same master list of Doctors, then ? is going to send a different letter to that same list of Doctors in about a month............and so on.

If a DR gets 1 letter or more a month, for the next 4 months about CCSVI they are at least going to look it up to see what the hell this thing is. You could tell them about it, or see if they might consider simple Doppler of the area down the road, or if they have heard of some gathering of Doctors discussing it or.................
The idea is to make sure they keep seeing CCSVI come across their desk at least 1 a month.

And I think that other states should do the same. The more they talk to each other about it the faster things will change. So if you are from MN and willing to mail some Doctors please PM me.
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