Are there less risks with a Stent in the Azygos vein

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby adamt » Sun May 16, 2010 12:24 pm

thanks mshusband, you've explained it very clearly.
i understand now that it probably isnt (just) the azygos.

But as my symptoms only effect my lower body (mobility/bladder) and my uipper body moves completely fine, what would this suggest?
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Postby sofia » Sun May 16, 2010 12:54 pm

I am a bit puzzeled about that as well. I had 90% blocked azygos, and 70 and 50 percent on the jugulars. Azygous was the most critical stenosis.

I have been ill for more then 8 years now, I mainly got braininvolvment, but also spine.

I can not say I got major bladder proplems, or major problems walking, even if I lately have been experiencing light urgency, and a bit weaker legs.

I have been thinking that maybe this azygous stenosis is new, or only recently has become critical, and that I'm only just starting to feel the consequenses of it. My health and over all well beeing has stooped the last year. I've suddenly had frequent attacks, I have had worsening symptoms, and general weakening.

I must admit I don't know much about the different types and spots for stenosis, and link to different types of MS, but I was supriced to find out my azygous was the most blocked as I am doing so well compared to a lot of other patients that has been ill for 8 years. You can't tell by looking at me.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
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Postby jfhcrgvr » Tue Nov 09, 2010 5:15 pm

I just posted in the thread on the risks of stenting, as my wife was ballooned in August and we are now considering azygous stenting during a second procedure. I would love to know how he is doing this far out from his azygous stenting, as well as how others who've had that done are doing, too.

Thank you.
Steven
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Postby Rose2 » Tue Nov 09, 2010 7:34 pm

I am a huge proponent of stents. They hold open veins that need help.
I have a stent in my Azygos and now no more back pain, arm pain, leg pain.

Quote Bilemek:
"Im kind of against azygous stenting.

angio works 95% of the time there.

its a pretty dangerous place close to the heart for anything else."

Are you an Interventional Radiologist? sorry if I missed your credentials. If you are not an MD, you are certainly stating some strong Mis-Information.
Unless you have secured your opinion by your own IR experience, your statements are without merit. No one knows yet it Angio works 95% of the time for Azy. We are still collecting information, note all of the IRBs EVERYWHERE. My azygos was folded shut. Would not have stayed open with angio. It is more dangerous to not treat correctly the first time.
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Postby TMrox » Wed Nov 10, 2010 5:38 am

Salvatore 24 please mention the reference/link where you 've read that Zamboni has endorsed the use of stents. As far as I know Zamboni has never done that.

According to Zamboni's study the azygous vein had a very low rate of restenosis, only 4% with balloon angioplasty only. No stents.

See
http://www.jvascsurg.org/article/S0741-5214(09)01568-7/abstract/
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby CCSVIhusband » Wed Nov 10, 2010 7:19 am

Rose2 wrote:I am a huge proponent of stents. They hold open veins that need help.
I have a stent in my Azygos and now no more back pain, arm pain, leg pain.

Quote Bilemek:
"Im kind of against azygous stenting.

angio works 95% of the time there.

its a pretty dangerous place close to the heart for anything else."

Are you an Interventional Radiologist? sorry if I missed your credentials. If you are not an MD, you are certainly stating some strong Mis-Information.
Unless you have secured your opinion by your own IR experience, your statements are without merit. No one knows yet it Angio works 95% of the time for Azy. We are still collecting information, note all of the IRBs EVERYWHERE. My azygos was folded shut. Would not have stayed open with angio. It is more dangerous to not treat correctly the first time.
Rose2



Thanks Rose2 ... love hearing from you! Come around more often!
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Postby Sotiris » Wed Nov 10, 2010 1:33 pm

TMrox wrote:Salvatore 24 please mention the reference/link where you 've read that Zamboni has endorsed the use of stents. As far as I know Zamboni has never done that. [...]
Zamboni et. al placed at least one stent but only in the azygos vein.
Twisting was observed in 12 of 65 patients, and in one patient was not successfully resolved by means of simple PTA but required placement of a metallic, self-expanding stent having a diameter of ≥12 mm and a length that varied according to the patient’s anatomy picture (Fig 3),
excerpt from "A prospective open-label study of endovascular treatment of chronic cerebrospinal venous insufficiency"
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Postby Sotiris » Wed Nov 10, 2010 1:36 pm

Rose2 wrote:I am a huge proponent of stents. They hold open veins that need help.
I have a stent in my Azygos and now no more back pain, arm pain, leg pain.

Quote Bilemek:
"Im kind of against azygous stenting.

angio works 95% of the time there.

its a pretty dangerous place close to the heart for anything else."

Are you an Interventional Radiologist? sorry if I missed your credentials. If you are not an MD, you are certainly stating some strong Mis-Information.
Unless you have secured your opinion by your own IR experience, your statements are without merit. No one knows yet it Angio works 95% of the time for Azy. We are still collecting information, note all of the IRBs EVERYWHERE. My azygos was folded shut. Would not have stayed open with angio. It is more dangerous to not treat correctly the first time.
Rose2

And another quote from the same paper
AZY twisting is a venous malformation that has never been previously reported, to our knowledge. PTA was successful in reverting AZY twisting in 11 of 12 patients, whereas in one patient, stent insertion was required to eliminate and repair twisting (Fig 3). Among the remaining
11 patients, the AZY retwisted in one patient at 6 months. The patency rate was also satisfactory for PTA treatment of azygous hypoplasia in five of six patients, yielding a cumulative patency rate of 96% at 18 months (Fig 7).
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Postby Rose2 » Wed Nov 10, 2010 1:38 pm

Azygos 'twist'-
Some azygos twists are not just a slight turn, but like a candy wrapper twisted closed around a small piece of hard candy. Envision that. Logic tells you it is going to take 'something' to help it stay open.
Engineering here folks.
JOE
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Postby Sotiris » Wed Nov 10, 2010 1:41 pm

TMrox wrote:Salvatore 24 please mention the reference/link where you 've read that Zamboni has endorsed the use of stents. As far as I know Zamboni has never done that. [...]

And another from "Rationale and preliminary results of endovascular treatment of multiple sclerosis, the liberation procedure "
Membranous obstruction of the outlet of the azygous vein into the superior vena cava can be successfully managed by simple balloon dilatation. This procedure was performed in 38 out of 77 cases, and no recurrence was recorded at 1 year. Twisting of the azygous vein was observed in seven out of 77 cases that were also treated by balloon angioplasty. The latter recurred in two cases (29%), which were subsequently treated by stent insertion with a 6-month patency (Fig. 6).
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Postby FastBenz » Thu Nov 11, 2010 6:43 am

My Dr., Dr Arlslan in Tampa stated he only does the azygos due to the location and not being as much movement. He said doing the jugular, your neck moves too much which bends the metal of the stent, which could eventually break. Just think of when you bend a paperclip back and forth enough the metal snaps. Not saying the metal is the same but trying to relay the point.
My appointment is next Friday for the procedure.
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