The MS society does not represent me.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: The MS society does not represent me.

Postby PointsNorth » Fri Oct 14, 2011 1:23 pm

We'd better be careful what we post 'cuz it may be re-posted by Cece at a much later date (kidding) :oops:

What do I think 17 months later . . .
1. I'm still pretty feisty.
2. MS Society is a bit kinder & gentler in their approach to CCSVI. Some good help from them in recent weeks on unrelated matter. Moving in the right direction . . .
3. Where in the world is Dr. Freedman?
4. Many experts outside and around medicine are weighing in.
5. Not convinced that we need to bring "neuros" on-side. They seem busy circling the wagons.
6. Keep your friends close and your ****** closer.
7. Taking control of things within my control.
8. CCSVI as only the beginning of the end?
9. I love the WWW.
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Re: The MS society does not represent me.

Postby Cece » Fri Oct 14, 2011 2:01 pm

It was a good reminder of how upset we were, and rightfully so.

What do you mean by "CCSVI as only the beginning of the end"?
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Re: The MS society does not represent me.

Postby MrSuccess » Fri Oct 14, 2011 10:59 pm

thanks Cece , you continue to amaze me with your thoughtful posts.
What do I think CCSVI will look like in 365 days ? Promising ..... very promising.

The future looks very bright and promising for CCSVI treatment.

Let me start with this .......... we now have at our disposal the very thing great scientific
minds have long dreamed of ...... and that is .... WATSON .

When this incredible creation is finally used to solve medical dilemas ..... I hope Cancer is the first in line . Eventually all other diseases will benefit also. This massive data base[ that continues to grow ] will certainly at least narrow the focus ...... and allow the creative mind of man ...... to finish the puzzles that elude us.

Please note , we are not talking artifical intelligence . WATSON will provide a list of answers in descending probability .

For the record : Mr.Success predicts that WATSON will list TRAUMA as an important clue.

Our CCSVI medical pioneers will gather on a regular basis. They will formulate an agreed upon procedure for CCSVI treatment. The medical insurance providers will evaluate and support that treatment.

More and more medical imaging equipment , tools, and evaluations will appear ...... making today's MRI's , MRV's , CAT scans ....... look like antiques.

Somewhere , that long sought solution - disease modifying drugs - will be produced . They will be oral ........ and they will be effective.

And to quote that fellow from Buffalo [ he was a patient of Dr.Zamboni ] that first began cryptically to tell us about CCSVI ........... Dr.Zamboni will indeed recieve a ..... Nobel Prize.





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Re: The MS society does not represent me.

Postby civickiller » Sat Oct 15, 2011 1:22 am

as much as i hate the ms society, they are giving my friend $250/year, only 250 cheap bastards, for her to fix her car. being a car guy i know 250 wont fix sh!t, only good for basic maintenance.

im glad theyre giving her 250 but thats not going to fix her car
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Re: The MS society does not represent me.

Postby Cece » Sat Oct 15, 2011 6:58 am

I worry that we might still have some dark slogging between now and the bright future. Specifically the choice by Medicare and some BCBS companies to stop covering the procedure moves us backwards. And there still has not been a solution for Canadians other than for them to spend money and seek treatment out of country. I would like to see options in Canada but I do not think we'll have it in a year's time. But I think the future is very bright indeed, once we get to it: CCSVI treatment for everyone, improvements for most, options for those who have complications from the procedure (and early standardized care for what to do about those complications), new pharmaceutical options based on the new understanding of MS.

http://money.cnn.com/2011/09/12/technol ... /index.htm
The WATSON computer is being put to use in health care. Interesting!
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Re: The MS society does not represent me.

Postby PointsNorth » Sat Oct 15, 2011 1:48 pm

Cece wrote:It was a good reminder of how upset we were, and rightfully so.

What do you mean by "CCSVI as only the beginning of the end"?


Hi Cece, I think you answered your own question better than I could've. Some hope is better than none. We have simple math to figure out slowed perfusion/flow but still need to figure out if more vessels are involved (and way to keep the dang valves open). I too anticipate pharma involvement. Indeed, better living through science. Hurry up and wait.

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