Sounds like he is trying to work with the hospital on dates he can reserve the IR OR. I think he has said the word "patient" about ten times in my limited interactions with him. That is certainly what we are all trying to be, isn't it. A patient.We are working on some dates over the next few days. As I mentioned, be patient with us as we gets these dates for the hospital together. We will be in touch once we have that information together.
FlashHack wrote: I think he has said the word "patient" about ten times in my limited interactions with him. That is certainly what we are all trying to be, isn't it. A patient.
jay123 wrote:They are treating people there, they are excellent! I have had both angio and then a stent placed by them.
In addition to this they are GETTING IRB REVIEW FOR SOME FORMAL STUDIES.
Yep, in my view if they got such a lower percentage also likely they might not always find all the vein defects, for example in the azygous seems valve problems are difficult to find...according to Dr Sclafani a lot of experience and IVUS required - but not to say: if they find sthg, great you have more treatment possibilities for you in the US! And they may also learn with experience.bestadmom wrote:Liber8,
Dr. Sclafani has found 100% CCSVI in his patients. It was azygos involvement that wasn't in line with Zamboni's findings.
SandyK wrote:Shoot. I can still do it cheaper out of country including airfare for 2! It's a shame I can't afford to give my money to a local doctor.
Jenb wrote:Looks like beginning of August for me...
They called today with a date in July but to soon for me , still need passport and $$.
Nunzio wrote:Dear Dr. Sclafani,
I figured out why they did not find a problem in my left jugular vein I thought had a valve problem.
Dr. Galeotti explain this well: Valve cusps problems are easily identifiable by doppler but can be missed by contrast venography. Still those valve need to be dilated. See the following video starting at min 1.30.
FlashHack wrote:Very interesting. Dr. Siskin mentioned to me about finding people where CCSVI was detected by doppler US but not seen on the venogram. He spoke of it as a indication of how unreliable the doppler was, but this would seem to indicate that the venogram was the inaccurate one. Could this be what he encountered?
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