CCSVI treatment available in the U.S.!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bigfoot14 » Wed Oct 20, 2010 10:52 am

Meg8907 wrote:Anyone interested in learning more about CCSVI, PLEASE consider attending the Center for Vascular Awareness Roundtable meeting in Albany NY on 11/10/2010.

Dr. Michael Lenihan, Dr. Michael Dake, Dr. E. Mark Haacke, Dr. Manish Mehta, and patients who have received CCSVI treatment will be speaking. FREE TO THE PUBLIC!

This is a very important meeting and will be informative! All are invited, patients, healthcare workers, and anyone who may want to learn more about CCSVI are encouraged to attend!

Please visit and contact Sharon Cillis at 518-452-1048. Also, if you are interested in attending (or know someone who is) please rsvp at


Maybe you should see if you can get the local NMSS chapter to post this on their website under the upcoming events section
User avatar
Family Elder
Posts: 110
Joined: Mon Nov 30, 2009 4:00 pm
Location: State of confusion (Illinois)


Postby Guider » Wed Nov 17, 2010 5:50 pm

Hi everyone,

Just wanted you to know that my son received his call today, Nov. 17th for an appt. @ Albany on Dec. 14th., 2010. We first contacted the clinic on June 1st. Feeling very excited.

Live to the fullest; Love passionately; Laugh contagiously!
User avatar
Family Member
Posts: 51
Joined: Fri Jun 04, 2010 3:00 pm
Location: Newfoundland, Canada

Postby brave » Sun Nov 21, 2010 12:09 pm

Heading to Albany tomorrow, test on 11/23, procedure on 11/24.
will post updates after my procedure.

User avatar
Family Member
Posts: 61
Joined: Tue Feb 24, 2009 4:00 pm

Postby erinc14 » Sun Nov 21, 2010 1:21 pm

:) :!:
User avatar
Family Elder
Posts: 599
Joined: Sat Jun 12, 2010 3:00 pm
Location: Montreal

Postby SofiaK » Sun Nov 28, 2010 1:15 pm

I’m 4 weeks and 4 days post angioplasty and I don’t have big improvements. I wish I could walk even just a little bit. I see some small improvements that come and go, but I’m nowhere near getting up from the wheelchair.

Rest assured, Dr Siskin + clinic staff are great.

I got the Dr's report which notes that I had 2 left jugular stenoses, 1 small one in my right jugular, and 1 small stenosis in my azygous. I’m kind of worried since I didn’t get treated for my upper left jugular stenosis. Dr strongly suspected that I’d need a stent and I made it known beforehand that I didn’t want one.

Anyway, it’s too bad that I can't share that things are better for me.
User avatar
Family Member
Posts: 45
Joined: Mon Apr 05, 2010 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service