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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Cece » Mon May 24, 2010 7:30 am

FlashHack, lol, that is precise! Hopefully you are next.

June 16th is so soon...congrats!!
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Postby FlashHack » Mon May 24, 2010 7:44 am

:oops:
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Postby bmk1234 » Mon May 24, 2010 8:46 am

FlashHack wrote:At the risk of splitting hairs, what time zone are you in?


Central Time in the great state of Minnesota.
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Postby BooBear » Mon May 24, 2010 9:34 am

I am also on Central Time in the great state of Illinois. :)

I can't wait I can't wait I can't wait I can't wait!
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Re: was given the balloon angio on May 6th

Postby ljh » Mon May 24, 2010 1:35 pm

devinhubbard wrote:on both jugulars and my azygous. No more brain fog or fatigue. No more double vision. Feel so good! I want this for everyone.

HEY DEVIN! Wonderful! When it happening??
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Postby pklittle » Mon May 24, 2010 1:39 pm

FlashHack wrote::oops:


No date yet Flash?
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Postby MS_mama » Mon May 24, 2010 1:44 pm

patience, patients, you shall receive THE call.

Got mine today from Dr. Mandato. Great guy, answered all my questions and seemed pretty confident. He has seen some amazing improvements in patient symptoms. Is is psychosomatic or real? he asked, "We don't know but time will tell." although he indicated that the sx improvement were so dramatic he doubted that it was psychosomatic in origin.

Even after talking to him, I'm looking at a week or two before I get called about booking an appointment and as late as November if I want to be treated in the (cheaper) ambulatory center vs. the hospital. Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.

guess that means I *still* have to keep my phone glued to my hip. Oh well.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby FlashHack » Mon May 24, 2010 2:11 pm

MS_mama wrote:patience, patients...
Yes, Mamma... :roll:
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Postby Cece » Mon May 24, 2010 2:31 pm

MS_mama wrote:Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.

Any idea why it is a big maybe?
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby MS_mama » Mon May 24, 2010 2:54 pm

"maybe" he said because the schedule is constantly changing. He didn't want to promise that only to find out that by the time I got contacted it would be booked out till fall.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby BadCopy » Mon May 24, 2010 9:11 pm

BooBear wrote:I am also on Central Time in the great state of Illinois. :)

I can't wait I can't wait I can't wait I can't wait!


I contacted CCP the same night as CECE but i didnt call them until about 10 pm central time and the good Dr called today. Should get a call in 3-4 weeks for scheduling. Estimate of late August at the earliest for treatment. This is assuming all goes smoothly.

Hope that helps ease the nerves.
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Postby BooBear » Tue May 25, 2010 9:34 am

I called on the 12th...still waiting for my call back.

I haven't been feeling well lately, either, so it isn't helping my wait any to feel so crappy. Blooming weather here isn't helping- it is so dang hot outside!

I just hope I hear from them soon.
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I Have A Date!!

Postby FlashHack » Wed May 26, 2010 7:24 am

Just got the second call. I have been scheduled for July 12th!!

For those who were wondering about how bmk1234 got such an early date (June 16th) I believe it was due to a cancellation.

Now please excuse me while I go cash in my frequent flier miles... :D
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Postby mshusband » Wed May 26, 2010 7:31 am

Congratulations Flash ...

It's starting to come together ... this snowball rolling down hill is picking up speed.
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Postby BooBear » Wed May 26, 2010 7:43 am

Congrats, Flash!! I hope they call me soon!
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